**TW: Upsetting Content**
The Gordon Family have posted an unsettling update on the Change petition Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings.
Petition update
The Gordon family have said:
Karen has now been in Conquest hospital for more than 1 year and 6 months. Karen is continuing to have TPN (IV feeding) and IV fluid in hospital.
East Sussex Healthcare NHS Trust (ESHT) are still insisting that Karen should go to St Marks Intestinal Rehabilitation Unit, 100 miles away, for assessment for possible setting up of home PN. Karen still has major concerns about going to and being in St Marks. She has been asking for remote setting up of home PN while she is in Conquest hospital.
Karen’s gastroenterology consultant came to see Karen on Tuesday evening the 15th of July. He said that ESHT were preparing to get legal advice….
Message from the Gordon Family on the update
Thank you so much to everyone who has signed and shared the petition. Also, thank you very much to everyone who has chipped in to promote the petition. It is very generous of you and it makes a big difference. Thank you for your supportive comments. It is all much appreciated by us.
Please keep sharing this petition and telling people about Karen’s situation.
Information from the MEA
Dr Charles Shepherd is in regular contact with Karen's family on behalf of the ME Association, and has also written to the hospital, and is doing all he can to help
Further Information
- The ME Association: Deputy CEO of ESHT responds to Dr Charles Shepherd’s Letter | April 25, 2025
- The ME Association: Karen Gordon: Update on UCLH decision to not provide home based IV feeding | March 12, 2025
- The ME Association: Sky News: The UK Tonight programme covers severe ME | December 10, 2024
- The ME Association: ITV News: Woman in Sussex hospital for six months calls for ME treatment at home | July 24, 2024