Summary
- NHS Networks shared the ME/CFS Infographic Guide for Primary Care Healthcare Professionals on their blog (January 30th).
- The infographic, created by the ME Association, is designed to help healthcare professionals diagnose ME/CFS early and accurately, with information based on the 2021 NICE guideline.
- Healthcare professionals can access free resources, like the ME/CFS/PVFS Clinical & Research Guide and ME Medical magazine, by signing up for the mailing list.
NHS Networks is a free resource for people working in health and social care sectors to stay up to date with news, share information and build networks. On the 30th of January, NHS Networks shared our recently released ME/CFS Infographic Guide for Primary Care Healthcare Professionals on their blog.
Press Release
A brand-new one-page infographic has been created by the ME Association to help healthcare professionals make an accurate and early diagnosis in people with ME/CFS. It includes expert information from Dr Charles Shepherd (Honorary Medical Adviser to the ME Association), and is based on the new NICE guideline on ME/CFS.
ME (myalgic encephalomyelitis or encephalopathy), also known as CFS (chronic fatigue syndrome), is multisystemic disease involving the brain, muscle, immune and neuroendocrine (hormone producing) systems. It affects at least 250,000 people in the UK, and can affect all ages and ethnicities. Around 25% of people are severely or very severely affected, meaning they are housebound or in some bases bedbound, have speech and swallowing difficulties, and require 24 hour care. They may also require tube feeding (via a nasogastric or percutaneous endoscopic jejunostomy tube) to maintain their nutritional needs and fluid intake.
The guide provides an overview of the steps primary care practitioners should undertake and when to refer to secondary care. It contains vital information to support healthcare professionals identify ME/CFS, understand key symptoms, the type of investigations to undertake, and information relating to NHS specialist referrals.
Using our medical education budget, the ME Association can send free medical education resources to healthcare professionals who join mailing list. If you’d like to sign up to receive the ME/CFS/PVFS Clinical & Research Guide 2022 Edition (also known as the ‘Purple Book’) and the quarterly ME Medical magazine, please complete this sign-up form.
More Information
- Fab NHS Stuff: Infographic guide available to support in the diagnosis of ME/CFS | January 28, 2025
- ME/CFS Infographic Guide for Primary Care Healthcare Professionals | December 16, 2024

