A series of online workshops are running this summer for researchers, health professionals and people with ME, with the aim to raise the profile of ME/CFS clinical research, increase collaboration, attract new researchers and formulate research priorities.
The workshops are connected with the Research Working Group, set up by the UK Clinical Research Collaboration as part of the Department of Health and Social Care's Delivery Plan on ME/CFS. This is a great opportunity for researchers and health professionals, both within and outside of the field of ME/CFS, to contribute to this important discussion, as well as a chance for people with ME to share their valuable knowledge and experience.
Research workshops
The workshops are listed below. Each will be run independently and should be signed up for individually using the links provided.
1. Clinical trial design in people with ME/CFS 04 June 13:00 to 15:30
The speakers and discussions will look at clinical trial design in people with ME/CFS – how to optimise it, possibilities for a core outcome set and lessons from other disease areas. Eventbrite link for more information and to register:
2. Clinical trial platform studies 06 June 11:00 to 12:00
An online discussion about multi-site treatment trials for multiple sclerosis and Long Covid and drug repurposing research for ME/CFS. Eventbrite link for more information and to register:
3. Drug repurposing clinical trials in people with ME/CFS 26 June 13:00 to 15:30
The speakers and discussions will look at drug repurposing including clinical use and research findings, study design, and potential drugs such as low dose naltrexone (LDN). Eventbrite link for more information and to register:
4. ME/CFS research and underserved groups 16 July 10:00 to 12:30
This workshop will look at three areas, and will include breakout groups for discussion in each of these areas:
a) improving diagnosis and health care provision in people with ME/CFS particularly those who are already minoritized or socially disadvantaged in society.
b) disadvantaged groups within ME/CFS – the severely affected and children and young adults.
c) widening recruitment and participation in clinical trials for ME/CFS.
Eventbrite link for more information and to register: