thebmj have published an article about the recent All Party Parliamentary Group and the statement made by the Health Secretary Sajid Javid. The article is behind a paywall and some extracts are shown below.
Patients with myalgic encephalomyelitis (ME) can expect to see more research and support for the condition, which “has been neglected for far too long,” England’s health and social care secretary has said.
Speaking at the launch of a report by the All Party Parliamentary Group on Myalgic Encephalomyelitis on 25 May,1 Sajid Javid revealed that one of his own relatives had had her life severely affected by ME, and he pledged to tackle the lack of research on the condition. He will co-chair a round table of international experts next month to help set this research strategy
Although he told patients attending the launch that he could not “promise miracles” in finding a treatment, he pledged a new cross-government approach to supporting people with ME, which would encompass not only healthcare provision but also education, work and pensions, and local government.
- All Party Parliamentary Group on Myalgic Encephalomyelitis, Rethinking ME Report | May 2022.
- Torjesen I, NICE sets out steps NHS must take to implement ME/CFS guidelines | May 2022.
- Torjesen I, ME/CFS: Exercise goals should be set by patients and not driven by treatment plan, says NICE | October 2021