MEA Website Survey: What issues do you want your MP to lobby about after the general election?| 05 November 2019
What are the issues of most concern to you? Please complete the website survey and share your comments.
Year: 2019
We Respond to NICE ‘Suspected Neurological Disorders’ Quality Standard | 25 October 2019
Ewan Dale explains how the MEA has responded to this latest consultation from NICE and we review the controversial clinical guideline.
We’re at the Royal College of GPs conference in Liverpool! | 24 October 2019
The RCGP conference is underway and we’re there with Forward ME. Medical student Emilia Allwright has presented her research based on your responses to a recent survey.
MEA Press Release: Vital new research could lay bare the cause of one of world’s cruellest illnesses | 23 October 2019
“The ME Association is delighted to announce that our Ramsay Research Fund has been able to make three major research grants totalling nearly £200,000.”
MEA Summary Review: Differentiating Medical Uncertainty | 21 October 2019
We take a closer look at recent research from America that highlights concerns over inappropriate and harmful labelling and advocates for medicine to adopt a more patient-centred approach to care.
Happy To Move For You… helping invisibly ill people access seats on public transport by Ellie Kime | 21 October 2019
Ellie’s badges help people easily get a seat on public transport without needing to negotiate or feel anxious.
Invisible Illness Week The Sunflower Lanyard Scheme by Kate Stanforth | 18 October 2019
Kate reviews a popular scheme that provides extra assistance to people with disabilities.
Make ME Visible Campaign – Mummying and ME | 16 October 2019
The term “invisible illness” suggests there is nothing to show for it. No clear symptom that Joe Bloggs on the street would see as such.
Invisible Illness Week 2019 – Masked, Trapped and Crumbling by Kate Stanforth | 15 October 2019
Kate teamed up with a professional make-up artist and photographer to create concepts visualising her medical conditions.
The Autumn Issue of ME Essential – The Magazine for members of the ME Association | 14 October 2019
50 pages of ME-related content that we think you will find interesting and useful. It really is an essential magazine!
Make ME Visible Campaign – Invisible Illness Week 2019 | 14 October 2019
Is M.E. really an invisible illness? Which elements are visible and which parts remain hidden?
Telegraph: Most people complaining of Lyme disease are actually suffering from chronic fatigue, say experts | 12 October 2019
Following a SMC briefing, many news-media outlets report on the claim that chronic lyme disease is likely to be CFS.
ME Association September Summary of ME/CFS Published Research | 05 October 2019
We’ve updated the central Research Index and feature 12 ME/CFS research studies from September 2019.
MEA Website Survey: The Benefits of Having a Pet | 04 October 2019
This month we’re all about Pets and how much they can mean to someone who is not in the best of health.
Amended Cochrane Review: ‘Exercise therapy for chronic fatigue syndrome’ | 03 October 2019
The influential Cochrane organisation has published an updated review and issued a statement following concerns expressed by the patient community.
The Undefeatable Campaign: “I Sometimes Feel Defeated By My Disability – And That’s Okay,” by Pippa Stacey | 02 October 2019
Pippa explains what this national campaign has meant to her and we update on a recent meeting with Sport England.
M.E., Dysautonomia and Me by Naomi Gilchrist | 01 October 2019
Naomi talks about her recent diagnosis and how it compounds her daily struggles with M.E.
New Free Leaflet: The 2019-2020 Flu Vaccine | 01 October 2019
Flu season is upon us once again and Dr Shepherd takes another look at the issues surrounding vaccination for people with M.E.
ME Association Christmas Cards: On Sale Now! | 01 October 2019
MEA Christmas Cards now available in two designs in packs of 10 from £3.50.
The Disability Passport: A useful item to have if you are still able to work, or considering a return to work | 20 September 2019
Dr Shepherd reviews the evidence for using disabled passports at work.