February 2018

We want to hear from anyone who has a recent example of a medical assessor expressing inaccurate or even sceptical/hostile opinions about ME/CFS.

  All Party Parliamentary Group (APPG) on Disability  Summary of

Emma Jenkins has had M.E. for around 20 years. She tells us that her journey of recovery is far from over, but she’s much better than she was. Hers is another inspiring tale of patience, courage, and a determination not to be beaten.

Supporters who twirled the evening away during a Valentine dance at the Heacham public hall on Saturday night fulfilled a dream for the event’s organiser.

A controversial medical trial part-funded by the Department of Work of Pensions will emerge as “one of the greatest medical scandals of the 21st century” an MP today claimed.

We review what we know of NHS Personal Health Budgets and ask whether people with M.E. are making use of what appears to be a very useful resource.

A HUGE thank you to everyone who has kindly supported Lauren Childs’s call for knitted squares for her All about ME Knitathon project. Her aim now is to exhibit the blankets she has been making…

There is an overlap in symptom presentation between Pernicious Anaemia and M.E. and the lack of routine testing in the current NICE guideline for ME/CFS has now been challenged.

A new study suggests that a blood test following exercise may be a very good way to differentiate between people who have ME/CFS and people who don’t.

NICE has also confirmed the next steps in the development of the new guideline, starting with a further workshop with stakeholder organisations on 25 May to discuss the scope of the guideline.

This authoritative article appears in the current issue of Family Doctor and was written by Mary Dimmock, Susan Levine, MD, and Terri L. Wilder, MSW.

Glasgow Caledonian University’s Postgraduate Health Psychology programme, is looking for a few local volunteer patients and carers to help develop the practical understanding of trainee psychologists.

Dr Charles Shepherd and Dr William Weir, met with Carol Monaghan MP yesterday, to discuss and advise on the Westminster Hall debate on the PACE trial that is taking place on 20th February.

Minutes of meeting held in January, where charity members discussed plans for NICE workshop, RCGP conference, and Westminster Hall debate on ME/CFS.

If you are thinking about hosting Unrest in your local community, we hope that our tips and experiences will help you in planning and preparing for your own event.

My name is Lee Stammers, a-soon-to-be 40-year-old with M.E. I’m going BLUE for the whole of February (FeBLUEary) to raise awareness about the reality and seriousness of this cruel illness.

We want to include images of real people with M.E. on our website, in our blogs, and across our social media, and so we are asking you to send us quality digital photographs in whatever situations or activities you consider most representative of your life with M.E.