Hansard citation The Countess of Mar tabled a written question about the ethical approval given to the feasibility study at the Royal National Hospital for Rheumatic Diseases in Bath into …
Parliamentary Question: Lightning Process trial ethical approval Read More »
From the Scottish Daily Record, 28 October 2010 (story by Jolene Cargill) TEENAGER Eilidh Berwick faces a gruelling battle to cope with everyday tasks. The housebound 15-year-old is totally dependent on …
Scottish Daily Record tell a teenager’s story in graphic detail Read More »
From The Times, 26 October 2010. (Story by Garry Jenkins) The Getting On star tells Garry Jenkins how a real-life health scare gave became the stimulus to reignite her career …
‘Bedpan humour proves the best medicine for Joanna Scanlan’ – The Times Read More »
The ME Association has written to the National Research Ethics Service (NRES) to ask them to clarify what action they are taking, or may be taking, in relation to concerns …
Lightning Process trial and the National Research Ethics Service Read More »
Another parliamentary question related to the November 1 blood ban was tabled by David Anderson (Labour MP for Blaydon). He asked the Health Secretary if he will review the level …
Parliamentary Question: health service provision for ME/CFS/blood ban Read More »
The Countess of Mar will be raising the issue of XMRV and the ME/CFS blood donation ban in the House of Lords on Monday 8 November. http://services.parliament.uk/calendar/#/calendar/Lords/MainChamber/2010/11/8/events.html As this is …
XMRV and blood donation: short debate in the Lords on November 8 Read More »
From The Times, 27 October 2010 (Story by Sam Lister, Health Editor) Seventy children died from swine flu in England during the nine months of the pandemic, with death rates …
’70 young people died from swine flu last winter’ – The Times Read More »
From the Sunday Times, 24 October 2010. (Story by Richard Brooks) Lauren Cuthbertson was suffering from a long period of illness in which she fought glandular fever and then myalgic …
‘Ballet star returns after beating secret illness’, Sunday Times Read More »
From The Guardian, family section, 23 October 2010 (Story by Lia Leendertz) A little over a year ago, my husband, Michael, was diagnosed with ME. The letters stand for myalgic …
‘How we nearly lost the plot’ – Lia Leendertz writes in The Guardian, 23 October 2010 Read More »
Labour MP for Blaydon, David Anderson, asked the Secretary of State for Business, Innovation and Skills – whose Department runs the Government’s science budget – whether he would provide funding …
Parliamentary Question: funding for ME research into retrovirals Read More »
The ME Association has joined a ‘bangers and cash’ initiative as part of a novel fund-raising drive to boost our valuable work round the UK. To accelerate its fund-raising work, …
A ‘bangers and cash’ fund-raising drive for The ME Association Read More »
From JAMA, the Journal of the American Medical Association (Story by Bridget M. Kuehn). JAMA. 2010;304(15):1653-1656 (doi:10.1001/jama.2010.1421) Study reignites debate about viral agent in patients with Chronic Fatigue Syndrome A …
New article on the XMRV debate in the Journal of the American Medical Association Read More »
The Minister for Public Health, Anne Milton, has responded to related questions from two MPs about what the Department of Health plans to do with blood from people with ME …
Parliamentary Questions: UK blood banks and XMRV Read More »
The forecourt of Richmond House, the headquarters of the Department of Health in Whitehall, will be the setting for a demonstration on November 1 – to coincide with the introduction …
Whitehall demo about the UK blood ban on people with ME/CFS Read More »
Caroline Lucas, leader of Green Party and MP for Brighton Pavilion, tabled two written questions on the blood ban which is to be imposed on everyone in the UK who …
Parliamentary Questions: the UK blood ban on people with ME/CFS | 19 October 2010 Read More »
Stakeholders in the development of the current NICE guideline on ME/CFS have today (18/10/2010) received a letter from NICE stating that: We will shortly be undertaking reviews of the following …
NICE Guideline on ME/CFS: update on review process Read More »
From the Wall Street Journal, 15 October 2010 (Story by Amy Dockser Marcus) The Chronic Fatigue Syndrome Advisory Committee — which advises the head of HHS on policy and scientific …
‘XMRV on everyone’s mind at a Chronic Fatigue Syndrome neeting’ Read More »
From BBC News, 15 October 2010 A GP has been suspended from practising medicine for a year by the General Medical Council (GMC). Dr Sarah Myhill, 52, who has a …
Private Powys GP year ban for ‘inappropriate treatment’ Read More »
From New Scientist, 14 October 2010 People with ME banned from giving blood in the UK BLOOD transfusion services in the UK last week became the latest to ban people …
Blood ban – story in New Scientist, 14 October 2010 Read More »
From the ‘MedPage Today’ website, 14 October 2010 (Story by Emily P Walker, Washington correspondent) WASHINGTON — A federal advisory committee unanimously endorsed a recommendation Thursday to change the name …
“US advisory committee recommends name change to CFS-ME”, says MedPageToday Read More »
