Nina Muirhead, SAS Doctor Dermatology Surgery, Buckinghamshire Healthcare NHS Trust, Amersham Hospital, Whielden Street Extracts Re: Long covid: doctors must assess and investigate patients properly Dear Editor, I strongly echo this sentiment from my long COVID colleagues about assessing and investigating patients properly and would like to add that doctors must also diagnose patients properly. […]
Tag: treatment
The ME Association ME/CFS Research Round-up
In the last week, 5 new studies have been published. We look at the prevalence of perineural cysts and multi-omics revelations in ME/CFS.
Scottish Government Issue Caution Notice for Graded Exercise Therapy in ME/CFS & Post/Long-Covid
In an announcement that was delayed due to the pandemic, Scotland has now issued a cautionary notice on the use of GET in ME/CFS.
News & Comment: The Long-Covid Crisis and £10 million on NHS Specialist Clinics for Post-Covid Sufferers
The ME Association appeared in several media publications at the weekend sharing opinion about Long-Covid and the proposed new specialist clinics.
The ME Association Pneumonia and the Pneumococcal vaccine – do you need this protection?
Dr Shepherd answers a question about the pneumonia vaccine and provides the information you need to make an informed decision.
New Free Leaflet: The ME Association Guide to Post-Covid Fatigue Syndromes and Post-Covid ME/CFS
The information in this new guide should be of help to people when managing post-Covid fatigue syndrome and post-Covid ME/CFS.
Early Day Motion: Researching and supporting people with long Covid-19 symptoms
Carol Monaghan has tabled an Early Day Motion that we would like you to encourage your own MPs to support. A template email is included for you to use.
Medscape: Small-Fiber Polyneuropathy May Underlie Dysautonomia in ME/CFS
These potentially important findings were presented by Ryan Whelan from the Simmaron Research Institute at the recent IACFS/ME virtual conference.
How it feels to have Very Severe M.E. by Ruth Braham
“It is incessant, inescapable torture. You are trapped. Completely powerless. You’re in agony with countless unbearable symptoms…”
Meet The Scientist: Professor Chris Ponting – DecodeME
Chris Ponting talks about the DecodeME study that seeks to understand the causes of M.E. and could help advance the discovery of effective treatments.
The DecodeME Genetics Study: Letters to The Times
Published letters in response to the DecodeME research announcement and recent articles. With Jeremy Hunt and Carol Monaghan.
ME Awareness: “GP’s have not been given any training to recognise a patient with ME,” by Smita Dutta | 13 May 2020
“The GP’s I have seen treat everyone based on symptoms rather than the whole illness itself…”
ME Awareness: The Lost Years by Smita Dutta | 06 May 2020
“While writing this I am again thinking, “Why me?” I do not know when I am going to stop thinking about his question, maybe I never will.”
ME Awareness: What you need to know about M.E. | 01 May 2020
This free download provides information to help in the understanding of Myalgic Encephalopathy.
ME Association Weekly Update: Coronavirus and ME/CFS – Free Leaflet and Vulnerability Letter | 24 April 2020
Dr Shepherd has updated the weekly bulletin on covid-19 and ME/CFS.
ME Association Weekly Update: Coronavirus and ME/CFS – New Leaflet and Letter | 17 April 2020
We provide a weekly update on Covid-19 in a new free leaflet and a letter about vulnerability to be used when required.
Share Your Stories for ME Awareness Week: The Lost Years and a Focus on Symptoms| 06 March 2020
Sharing your story is one of the best ways we have of improving understanding and awareness of M.E.
More people in Notts are living with painful ‘invisible’ condition fibromyalgia | 07 January 2020
The number of people in Nottinghamshire suffering from fibromyalgia has soared in recent years, according to new NHS figures.
MEA Website Survey: Physiotherapy and ME | 02 July 2019
A new group of health professionals – Physios For ME – are seeking your feedback in this month’s MEA website survey.
Royal Society of Medicine conference, 11 July 2009 – Catriona Courtier presentation
Catriona Courtier, from the Network MESH group in West London, gave a speech about treatment from the patient’s perspective when she addressed the Royal Society of Medicine conference on ME and CFS on Saturday, 11 July 2009. The text of her speech follows: