Tag: Support

The members magazine is packed full of content relating to ME/CFS – news, research, interviews, medical information, Ask the Doctor, letters, tips, Real Lives, Relationships, Covid-19 and the new NICE clinical guideline!

It is ME Awareness Week in May and we’ll be focusing on health and social care against the background of the new NICE clinical guideline for ME/CFS.

There has been good news in recent days about potential vaccines for Covid-19 that could see an end to restrictions for people in the UK by Easter 2021…

ME Essential Magazine and the Christmas Supplement will be sent out to ME Association members this week. We hope there is something for everyone!

In the first week of December, any donation to the Big Give Appeal will be doubled! Help us to change the medical mindset within the NHS…

The NICE stakeholder consultation process begins today. You can take part and help produce the new clinical guideline on ME/CFS…

The new NICE guideline has removed graded exercise as a recommended management option…

The information in this new guide should be of help to people when managing post-Covid fatigue syndrome and post-Covid ME/CFS.

Paul Garner continues his BMJ Blog, explaining his experiences with Long-Covid and calls for appropriate guidance and support.

Having a consultant physician as part of a ME/CFS clinical team is essential. This is a fantastic opportunity to join one of the best NHS services in the country.

“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”

Holly aged 9, has written about her mum, Chantalle, and explains what life is like being the daughter of a parent with M.E.

Pledge your support for the Big Give Challenge and help us to continue our campaign of accurate and timely information to health professionals!

During the covid-19 lockdown, have you felt confident in the NHS’s ability to provide appropriate care and support as a person with ME/CFS?

We update our general leaflet on Covid-19 and ME/CFS and this is reproduced below along with all our range of free leaflets about the infection and lockdown.

“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”

“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”

“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”

We provide support, reliable information, a voice when needed, and funding for medical research.

“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”