Paul Garner continues his BMJ Blog, explaining his experiences with Long-Covid and calls for appropriate guidance and support.
Having a consultant physician as part of a ME/CFS clinical team is essential. This is a fantastic opportunity to join one of the best NHS services in the country.
“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”
Holly aged 9, has written about her mum, Chantalle, and explains what life is like being the daughter of a parent with M.E.
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During the covid-19 lockdown, have you felt confident in the NHS’s ability to provide appropriate care and support as a person with ME/CFS?
We update our general leaflet on Covid-19 and ME/CFS and this is reproduced below along with all our range of free leaflets about the infection and lockdown.
“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”
“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”
“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”
We provide support, reliable information, a voice when needed, and funding for medical research.
“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”
Two stories from very generous supporters of the ME Association.
“The GP’s I have seen treat everyone based on symptoms rather than the whole illness itself…”
“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”
“Since the coronavirus started to spread I have cancelled all my support because I wanted to be completely isolated.”
“I’d like to say once I got the diagnosis, things got easier, but they didn’t. I ended up bedbound then ultimately paralysed in some of the darkest days I’ve experienced.”
“I grieve for the old me, while managing the situation I am currently in, and looking into the future and questioning, will I ever be well enough?”
ME Carers Connected can help put carers in touch with one another for mutual support and to share experiences.
Dr Shepherd provides another update and comprehensive guidance for people with ME/CFS.