Merryn’s Story: Severe ME Week 2020
Caring for someone with Very Severe M.E is both an …
Caring for someone with Very Severe M.E is both an …
The 8th August is Understanding & Remembrance Day for Severe …
It all started for me in 1992, when I was …
Katie Meehan, Social Media Manager In the run-up to Severe …
Raising Awareness of Severe ME – A Call for Your Case Studies|15th July 2020 Read More »
Anonymity is a cover for the disappointment that is only overwhelmed by the relentless exhaustion of M.E.
Laura, now 25, has chosen to lay bare the brutal reality of life with M.E. – which affects 250,000 people in the UK.
The nursing home was accommodating at first. However, they didn’t have any experience caring for M.E patients and I don’t think they fully realised the extent of the situation.
Day after day this fragile hope is crushed, shattered, ground down like broken glass. Monotony, drudgery, despair! How can I escape?
The impact of these last three decades of attempts to bury the serious disease M.E. under a sea of unrelated and vague “fatigue conditions” has been catastrophic for patients.
“Many only succeed in obtaining the benefits they should be entitled to after going through a long and stressful appeal process.” Dr Charles Shepherd.
It is Severe ME Day on Thursday, but we think people severely affected deserve to have a full week dedicated to raising awareness.