My Mummy and M.E. by Holly Peretti
Holly aged 9, has written about her mum, Chantalle, and explains what life is like being the daughter of a parent with M.E.
Relationships
ME Awareness: “I would have been a terrific husband and father if not for ME,” by Russell Fleming | 22 May 2020
“Without doubt my biggest regret has been that I have not been able to have my own family.”
ME Awareness Press Release: Mum of tragic teen with devastating illness speaks out about years lost in lockdown | 18 May 2020
“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”
ME Awareness: “While in many ways it was a relief to finally have a diagnosis, both I and my husband were devastated,” by Carolyn White | 17 May 2020
“I didn’t complete my degree but received sufficient qualifications to be ordained in September 2007.”
ME Awareness: “I suffered without help for so long, we went to every doctor and agency without answers,” by Ellyn Gould | 16 May 2020
“M.E. still affects every aspect of my life. Attending school was a huge hurdle for me and one I still struggle with.”
ME Awareness: “When my youngest was 11, he asked me if I was going to die. I was horrified,” by Theresa Baynham | 13 May 2020
“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”
ME Awareness: The Lost Years and Rediscovery by Kate Stanforth | 12 May 2020
“I’d like to say once I got the diagnosis, things got easier, but they didn’t. I ended up bedbound then ultimately paralysed in some of the darkest days I’ve experienced.”
ME Awareness: The Lost Years by Wendy Coxhill | 11 May 2020
“The first big challenge was when I became wheelchair-bound 3 years ago. The next loss was when I could no longer read or watch a film.”
ME Awareness: The Lost Years by Smita Dutta | 06 May 2020
“While writing this I am again thinking, “Why me?” I do not know when I am going to stop thinking about his question, maybe I never will.”
ME Awareness: The Lost Years by Holly O’Brien | 02 May 2020
“I grieve for the old me, while managing the situation I am currently in, and looking into the future and questioning, will I ever be well enough?”
ME Carers Connected: Let us put you in touch with other carers | 30 April 2020
ME Carers Connected can help put carers in touch with one another for mutual support and to share experiences.
MEA Website Survey: Why are we asking about doctor-patient relations in this month’s survey?
What is your relationship like with your GP? Dr Shepherd will use the feedback we receive when talking with NICE and will also help answer questions on MEA Facebook this week.
The picture that hides illness that can make young woman feel like she has run a marathon after two bottles of wine | 18 December 2019
Catherine Allen, 22, was initially told she was just tired like most teenagers until she was diagnosed
Degrees of distance – Guest Blog by Marion Michell | 05 December 2019
When you are sick with M.E. maintaining relationships can be very hard. Marion writes about the challenges we can all face.