The ME Association Research Round-up
This week 3 new research studies have been published and we highlight 2 of them.
Post Exertional Malaise
Forward ME Letter re: Post-Covid/ME/CFS Management with Caution about Exercise
This letter is now available for anyone to download and share to help raise awareness of Post-Covid management and the similarities with M.E.
NHS England & Department of Health and Social Care Dismiss Concerns about Graded Exercise and Post-Covid Illness Management
The responses from Chris Whitty at the Department of Health and Social Care and Stephen Powis at NHS England to ME Association concerns, were very disappointing.
The Times: Warning over conflicting medical advice to coronavirus recovery patients
“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.
MEA Statement: NHS England Guidance on the Management of Post-Covid Fatigue Syndromes
The serious concerns expressed by the MEA about the Covid recovery guideline resulted in a reply from NHS England and an article in The Times newspaper.
ME Awareness: ‘Dialogues for a neglected illness’ a Wellcome Project by Natalie Boulton and Josh Biggs | 27 May 2020
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
British Medical Journal Opinion: Covid-19 and fatigue – a game of snakes and ladders | 20 May 2020
“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community.” Prof. Paul Garner.
New ME Association Leaflet: Is ME a neurological disease? | 19 February 2020
We summarise all the key clinical, research and political evidence supporting a neurological classification for M.E.