Covid Vaccinations and ME/CFS: Community Feedback!
We provide a summary of the feedback received from people with ME/CFS who have had the vaccine or who have tried to get the vaccine as a priority.
PEM
ME and Post-Exertional Malaise: “It is much more than fatigue and stiffness…”
We hear from someone with severe ME who describes what Post-Exertional Malaise feels like and the measures that can help when in this situation…
ME Association New Free Leaflet – The Importance of Early & Accurate Diagnosis in ME/CFS
A new FREE 6-page leaflet that helps determine what is required to make an early and accurate diagnosis of ME/CFS.
The ME Association Research Round-up
This week we review 4 new research studies that have been published about ME/CFS.
The ME Association Research Round-up
This week 3 new research studies have been published and we highlight 2 of them.
Medscape: Small-Fiber Polyneuropathy May Underlie Dysautonomia in ME/CFS
These potentially important findings were presented by Ryan Whelan from the Simmaron Research Institute at the recent IACFS/ME virtual conference.
The ME Association End of Week Research Round-up
We highlight 3 studies from last week’s 6 ME/CFS research publications.
MEA Statement: NHS England Guidance on the Management of Post-Covid Fatigue Syndromes
The serious concerns expressed by the MEA about the Covid recovery guideline resulted in a reply from NHS England and an article in The Times newspaper.
ME Awareness: ‘Dialogues for a neglected illness’ a Wellcome Project by Natalie Boulton and Josh Biggs | 27 May 2020
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
British Medical Journal Opinion: Covid-19 and fatigue – a game of snakes and ladders | 20 May 2020
“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community.” Prof. Paul Garner.
ME Awareness: “ME is a cruel illness and whether we have it mild or severe, we all still suffer,” by Naomi Gilchrist | 15 May 2020
“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”
New ME Association Leaflet: Is ME a neurological disease? | 19 February 2020
We summarise all the key clinical, research and political evidence supporting a neurological classification for M.E.
There’s No Point in me having a Netflix subscription or an Audible account by Anna Wood | 07 August 2019
Cognitive symptoms are common for everyone who has M.E., but it is the cognitive fatigue which disables me the most.
Advances in Understanding the Pathophysiology of ME/CFS | 08 July 2019
When does an illness become a disease? Dr Komaroff explores what we know about the biological abnormalities in ME/CFS.