ME Association New Free Leaflet – The Importance of Early & Accurate Diagnosis in ME/CFS
A new FREE 6-page leaflet that helps determine what is required to make an early and accurate diagnosis of ME/CFS.
Pain
The ME Association Research Round-up
This week we feature a new study that examines acute Epstein Barr as a trigger and another that reports on use of IV Saline as a potential treatment.
The ME Association End of Week Research Round-up
We highlight 3 studies from last week’s 6 ME/CFS research publications.
Severe ME: Why is improvement subject to such harsh judgement and not celebrated?
“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”
The Untold Stories: Severe ME Week 2020
We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.
ME Awareness: “ME is a cruel illness and whether we have it mild or severe, we all still suffer,” by Naomi Gilchrist | 15 May 2020
“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”
ME Awareness: The Lost Years by Wendy Coxhill | 11 May 2020
“The first big challenge was when I became wheelchair-bound 3 years ago. The next loss was when I could no longer read or watch a film.”
Gabapentin and pregabalin: New safety concerns issued by the FDA in America | 25 February 2020
US FDA issue new safety concerns about the drugs and their use in people who have significant respiratory illnesses.
More people in Notts are living with painful ‘invisible’ condition fibromyalgia | 07 January 2020
The number of people in Nottinghamshire suffering from fibromyalgia has soared in recent years, according to new NHS figures.
Relationship between physiotherapists and people with M.E. is poor but there is potential to improve | 22 August 2019
Physios 4 ME report on the results from the MEA website survey that took place in July.
Severe ME Day: ‘LIFE’ with Very Severe M.E. – A poem by Natasha Adams | 08 August 2019
Day after day this fragile hope is crushed, shattered, ground down like broken glass. Monotony, drudgery, despair! How can I escape?