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Welcome to your magazine. News, research, medical information, tips on management, stories and plans for ME Awareness Week!
We’ve updated our central Research Index and feature 17 ME/CFS research studies from June 2019.
Bill Clayton shares his experience of loneliness and how this aspect of M.E. affects him and others in the community.
We’ve updated our central Research Index and feature 23 ME/CFS research studies from May 2019.
Parliamentary questions about making ME/CFS a notifiable illness in schools and the level of Government funding for biomedical research into illness in the 2008-9 financial year were answered in the form of written replies yesterday (5 November 2009).
The ME Association wrote to Sir Liam Donaldson, Chief Medical Officer at the Department of Health, on Tuesday 27 October about XMRV research. In particular, we raised the situation regarding people with ME/CFS and blood donation. Click here to read a copy of this letter. An acknowledgement from the CMO has been received.
Edwina Hart, Minister for Health and Social Services in Wales, has set up a "Task and Finish Group" to work on a new framework for NHS services for people with ME/CFS in Wales – to be run on NICE Guideline principles. Wales is notoriously short of effective specialist services for people with ME/CFS.
RETROVIRUS XMRV and ME/CFS: WHAT DO WE KNOW SO FAR? AND WHAT DON’T WE KNOW? BACKGROUND On Friday 9 October, the front page of the UK Independent newspaper carried a major news item under the heading, ‘Has science found the cause of ME?’ This referred to new research findings from America which indicate that a recently […]
The politics to secure a replacement ME/CFS service in Northern Ireland seem to be falling into place following the closure of the Windsor House clinic at Belfast City Hospital in July. But the shape of the future service is still far from clear.
From the New York Times, 12 October 2009 (writer: Denise Grady) A study published last week in the journal Science suggested that might be the case, reporting that many patients who had the syndrome were infected with a recently discovered virus.
ME Association fundraiser Eric Smart reached Adelaide in south Australia yesterday (Saturday 10 September 2009) – at the end of a 14,386-mile cycle ride from his home town in Aberdeen.
Four million pages have been read at this website since we started counting on 7 May 2007. This morning we notched up this figure – while at the same time recording our 800,000th visitor. The ME Association website also continues to be the top-rated site at Google for information about M.E. and ME/CFS. Thursday’s announcement […]
Lead story in The Independent, 9 October 2009, by science editor Steve Connor Scientists say they have made a dramatic breakthrough in understanding the cause of chronic fatigue syndrome – a debilitating condition affecting 250,000 people in Britain which for decades has defied a rational medical explanation.
From BBC Online, 9 October 2009 US scientists say they have made a potential breakthrough in understanding what causes the condition known as chronic fatigue syndrome (CFS) or ME.
Everyone at the ME Association – staff, trustees and volunteers – have this week been passing on their condolences to Gill Briody on the sad loss of her partner Robin, who died peacefully in hospital at Oxford on Sunday afternoon.
We had a £200 winner in our ‘Great Weather Lottery’ today. Congratulations to Mrs C Nicholson, who also collected one of the more common £2 prizes in the draw– which is held daily from Monday to Thursdays inclusive. There are chances on four days every week to win the top prize of £10,000. For details […]
They’re holding a private disco in Aberdeen this weekend to help replenish the bank balance of Eric Smart, the 44-year-old cyclist who is riding from Aberdeen to Adelaide, Australia, in aid of The ME Association. At the moment, he’s in Coober Pedy, the Australian outback town which mines the world’s most valuable opals. The red […]
From BBC News online, Friday 18 September 2009 The only treatment centre for ME sufferers in Northern Ireland has closed down.
This is a summary of key points to emerge from two meetings of The ME Association Board of Trustees. These meetings took place at our Head Office in Buckingham on Monday afternoon, September 7th 2009 and on Tuesday morning, September 8th 2009. Informal discussions also took place on a number of issues on the Monday […]