The responses from Chris Whitty at the Department of Health and Social Care and Stephen Powis at NHS England to ME Association concerns, were very disappointing.
Tag: National Institute Health Research
MRC: Largest Genetic Study into ME is Launched!
The £3.2 million study is jointly funded by the MRC and hopes to aid development of diagnostic tests and targeted treatments.
Patients, Scientists, and Advocates Celebrate £3.2m Funding for DecodeME, the Largest Ever ME/CFS DNA study!
Funding for the world’s largest genetic study into myalgic encephalomyelitis (M.E.), led by a partnership of patients and scientists, has been announced today.
All-Party Parliamentary Group on M.E. Invite Your MP to Attend March Meeting | 28 February 2020
Last chance to invite your MP to attend the next APPG meeting on Tuesday, 3rd March.
The ME Association to Fund Six Student Bursaries for the March 2020 CMRC Research Conference in Bristol | 31 January 2020
Tickets are now available for the research conference and the MEA is offering student bursaries to encourage student attendance.
MEA Website Survey: Why are we asking about genetics research into ME/CFS? | 06 January 2020
In this month’s survey we are hoping you will support the proposed major study on genetics.
ME/CFS Biomedical Partnership PPI Steering Group Update | 02 December 2019
We explain what happened at the recent MRC/NIHR workshop and invite you to complete a survey on research criteria.
MRC/NIHR Workshop: The ME/CFS Biomedical Partnership – Genetics and Biomarkers | 07 November 2019
The MRC will host a workshop to help the CMRC with its major bioresource proposal involving 20,000 samples and data from people with M.E.
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