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“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”
Emma spent a decade in isolation at home after becoming severely ill with ME in 2004. She has been interviewed by the BBC together with Dr Shepherd.
“I’d like to say once I got the diagnosis, things got easier, but they didn’t. I ended up bedbound then ultimately paralysed in some of the darkest days I’ve experienced.”
“The first big challenge was when I became wheelchair-bound 3 years ago. The next loss was when I could no longer read or watch a film.”
“It is incredible how strong she has been. I don’t think I would have coped with what Dee has experienced. She is my inspiration to keep on going and to support her on this journey.”
A woman left bedbound with an incurable illness revealed her fight simply to be believed.
Physios 4 ME report on the results from the MEA website survey that took place in July.
I have cared day and night for my wife who has lain in unspeakable torment, torture and agony, for twenty-six years.