“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”
The nursing home was accommodating at first. However, they didn’t have any experience caring for M.E patients and I don’t think they fully realised the extent of the situation.
Baroness Blackwood had been misdiagnosed with ME/CFS before it was determined she had Ehlers-Danlos Syndromes (EDS).