Tag: ME symptoms

The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.

“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”

“What I am suggesting is that, however people refer to M.E., however people experience it, chronic fatigue is not the same thing.”

“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”

“To be a disabled person does not mean that you must solely be a wheelchair user or someone with a physical deformity.”

“Managing energy is the most difficult but important factor. My advice would be to try to establish a routine to get the best balance between sleep, activity and rest.”

“I’d like to say once I got the diagnosis, things got easier, but they didn’t. I ended up bedbound then ultimately paralysed in some of the darkest days I’ve experienced.”

“It is incredible how strong she has been. I don’t think I would have coped with what Dee has experienced. She is my inspiration to keep on going and to support her on this journey.”

“I continue to be confined to the house. Sitting or standing up for more than 2 minutes makes me very lightheaded, so I spend 23 hours each day lying down.”

“My life has completely changed. I try to explain how it feels, it’s like a past life really.”

A MODEL has revealed how her life was left “unrecognisable” after being blighted by a cruel energy-sapping disease that took eight years to diagnose.