Forward-ME Issue Position Statement on Spinal Surgery and ME
Forward-ME has issued a position statement and expressed concern about spinal surgery and ME.
ME symptoms
ME Awareness: ‘Dialogues for a neglected illness’ a Wellcome Project by Natalie Boulton and Josh Biggs | 27 May 2020
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
ME Awareness: Failure to accurately diagnose can lead to lifetime of misery and suffering by Debbie Mckno | 17 May 2020
“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”
ME Awareness: Why Chronic Fatigue is not M.E. by Joanne Hunt | 15 May 2020
“What I am suggesting is that, however people refer to M.E., however people experience it, chronic fatigue is not the same thing.”
ME Awareness: “ME is a cruel illness and whether we have it mild or severe, we all still suffer,” by Naomi Gilchrist | 15 May 2020
“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”
ME Awareness: “My worst symptom is the physical weakness in my whole body,” by Maddy | 14 May 2020
“To be a disabled person does not mean that you must solely be a wheelchair user or someone with a physical deformity.”
ME Awareness: ME Symptoms and Management by Ann Jones | 14 May 2020
“Managing energy is the most difficult but important factor. My advice would be to try to establish a routine to get the best balance between sleep, activity and rest.”
ME Awareness: The Lost Years and Rediscovery by Kate Stanforth | 12 May 2020
“I’d like to say once I got the diagnosis, things got easier, but they didn’t. I ended up bedbound then ultimately paralysed in some of the darkest days I’ve experienced.”
ME Awareness: Dee’s Journey – From seizure, to brain surgery, to ME by Michael Govier | 11 May 2020
“It is incredible how strong she has been. I don’t think I would have coped with what Dee has experienced. She is my inspiration to keep on going and to support her on this journey.”
ME Awareness: The Lost Years by Rachel Hill | 10 May 2020
“I continue to be confined to the house. Sitting or standing up for more than 2 minutes makes me very lightheaded, so I spend 23 hours each day lying down.”
Former weightlifter from Pendle tells how illness left her unable to get out of bed | 13 January 2020
“My life has completely changed. I try to explain how it feels, it’s like a past life really.”
It took me eight years to convince docs something was wrong – after ME left me ‘unrecognisable’ | 06 January 2020
A MODEL has revealed how her life was left “unrecognisable” after being blighted by a cruel energy-sapping disease that took eight years to diagnose.