Tag: ME Awareness Week 2020

“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”

“I didn’t complete my degree but received sufficient qualifications to be ordained in September 2007.”

“M.E. still affects every aspect of my life. Attending school was a huge hurdle for me and one I still struggle with.”

“The most frustrating aspect of sleep is the frequent inability to enter deep sleep. It feels like I only ever dream, and it is exhausting.”

“What I am suggesting is that, however people refer to M.E., however people experience it, chronic fatigue is not the same thing.”

“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”

“To be a disabled person does not mean that you must solely be a wheelchair user or someone with a physical deformity.”

“Managing energy is the most difficult but important factor. My advice would be to try to establish a routine to get the best balance between sleep, activity and rest.”

We want to increase the flow of information to GPs and other healthcare professionals about M.E.

Two stories from very generous supporters of the ME Association.

“The GP’s I have seen treat everyone based on symptoms rather than the whole illness itself…”

Emma spent a decade in isolation at home after becoming severely ill with ME in 2004. She has been interviewed by the BBC together with Dr Shepherd.

“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”

“Since the coronavirus started to spread I have cancelled all my support because I wanted to be completely isolated.”

We invest in biomedical research but need your support so that we can do more to determine the cause(s) of M.E. and help develop effective treatments.

This exciting study will examine the physiology of M.E. and is led by researchers from Leicester, Oxford and Manchester Universities and Physios 4 M.E.

“The distance round the allotments is approximately 340 yards, so it should take me 14 days to reach the 2.6-mile goal,” Juan Cortlett.

“I’d like to say once I got the diagnosis, things got easier, but they didn’t. I ended up bedbound then ultimately paralysed in some of the darkest days I’ve experienced.”

“The first big challenge was when I became wheelchair-bound 3 years ago. The next loss was when I could no longer read or watch a film.”

Dr Charles Shepherd contributes to a new article about Covid-19 and possible Post-Viral Fatigue Syndrome.