ME Awareness Week 2020

ME Awareness: Failure to accurately diagnose can lead to lifetime of misery and suffering by Debbie Mckno | 17 May 2020

“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”

ME Awareness: Failure to accurately diagnose can lead to lifetime of misery and suffering by Debbie Mckno | 17 May 2020 Read More »

“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”

ME Awareness: “While in many ways it was a relief to finally have a diagnosis, both I and my husband were devastated,” by Carolyn White | 17 May 2020

“I didn’t complete my degree but received sufficient qualifications to be ordained in September 2007.”

ME Awareness: “While in many ways it was a relief to finally have a diagnosis, both I and my husband were devastated,” by Carolyn White | 17 May 2020 Read More »

“I didn’t complete my degree but received sufficient qualifications to be ordained in September 2007.”

ME Awareness: “I suffered without help for so long, we went to every doctor and agency without answers,” by Ellyn Gould | 16 May 2020

“M.E. still affects every aspect of my life. Attending school was a huge hurdle for me and one I still struggle with.”

ME Awareness: “I suffered without help for so long, we went to every doctor and agency without answers,” by Ellyn Gould | 16 May 2020 Read More »

“M.E. still affects every aspect of my life. Attending school was a huge hurdle for me and one I still struggle with.”

ME Awareness: “If only I could experience consistent nights of restorative sleep, my life in general might be better,” by Russell Fleming | 16 May 2020

“The most frustrating aspect of sleep is the frequent inability to enter deep sleep. It feels like I only ever dream, and it is exhausting.”

ME Awareness: “If only I could experience consistent nights of restorative sleep, my life in general might be better,” by Russell Fleming | 16 May 2020 Read More »

“The most frustrating aspect of sleep is the frequent inability to enter deep sleep. It feels like I only ever dream, and it is exhausting.”

ME Awareness: “ME is a cruel illness and whether we have it mild or severe, we all still suffer,” by Naomi Gilchrist | 15 May 2020

“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”

ME Awareness: “ME is a cruel illness and whether we have it mild or severe, we all still suffer,” by Naomi Gilchrist | 15 May 2020 Read More »

“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”

ME Awareness: ME Symptoms and Management by Ann Jones | 14 May 2020

“Managing energy is the most difficult but important factor. My advice would be to try to establish a routine to get the best balance between sleep, activity and rest.”

ME Awareness: ME Symptoms and Management by Ann Jones | 14 May 2020 Read More »

“Managing energy is the most difficult but important factor. My advice would be to try to establish a routine to get the best balance between sleep, activity and rest.”

ME Awareness: BBC News: Eastbourne mum with ME gets some life back after years lost in lockdown | 13 May 2020

Emma spent a decade in isolation at home after becoming severely ill with ME in 2004. She has been interviewed by the BBC together with Dr Shepherd.

ME Awareness: BBC News: Eastbourne mum with ME gets some life back after years lost in lockdown | 13 May 2020 Read More »

Emma spent a decade in isolation at home after becoming severely ill with ME in 2004. She has been interviewed by the BBC together with Dr Shepherd.

ME Awareness: “When my youngest was 11, he asked me if I was going to die. I was horrified,” by Theresa Baynham | 13 May 2020

“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”

ME Awareness: “When my youngest was 11, he asked me if I was going to die. I was horrified,” by Theresa Baynham | 13 May 2020 Read More »

“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”

ME Association Research: New study to measure physiological changes in daily activity in people with ME | 12 May 2020

This exciting study will examine the physiology of M.E. and is led by researchers from Leicester, Oxford and Manchester Universities and Physios 4 M.E.

ME Association Research: New study to measure physiological changes in daily activity in people with ME | 12 May 2020 Read More »

This exciting study will examine the physiology of M.E. and is led by researchers from Leicester, Oxford and Manchester Universities and Physios 4 M.E.

ME Awareness: The Lost Years and Rediscovery by Kate Stanforth | 12 May 2020

“I’d like to say once I got the diagnosis, things got easier, but they didn’t. I ended up bedbound then ultimately paralysed in some of the darkest days I’ve experienced.”

ME Awareness: The Lost Years and Rediscovery by Kate Stanforth | 12 May 2020 Read More »

“I’d like to say once I got the diagnosis, things got easier, but they didn’t. I ended up bedbound then ultimately paralysed in some of the darkest days I’ve experienced.”

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