Tag: ME Association

This week 3 new research studies have been published and we highlight 2 of them.

Do you have a passion for M.E. research? We are seeking a suitable candidate to join our team and help report scientific advances to the patient community.

This week 5 new studies were published. We highlight 3 that include neuroimaging reviews, hypermobility and intracranial hypertension, and the economic cost of ME/CFS in Australia.

We have updated the central research index to provide you with all the relevant studies into ME/CFS. An interesting study was published in the last week from the ME Biobank team.

“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.

It is an authoritative publication representing the most comprehensive, evidence-based summary currently available.

Kara’s brilliant album, recorded from her sickbed, is performing exceptionally well in the charts. Download your copy today!

Complete lowdown on almost everything that’s happening in the ME/CFS world right now!

Help save your charity by taking part or supporting the Prudential My RideLondon event on 15 and 16 August!

This week we feature two published studies about ME/CFS which are about CBT and Mindfulness.

During the covid-19 lockdown, have you felt confident in the NHS’s ability to provide appropriate care and support as a person with ME/CFS?

Virtual meeting – please email your own MP and ask that they attend this important meeting

“Without doubt my biggest regret has been that I have not been able to have my own family.”

“The most frustrating aspect of sleep is the frequent inability to enter deep sleep. It feels like I only ever dream, and it is exhausting.”

Dr Charles Shepherd contributes to a new article about Covid-19 and possible Post-Viral Fatigue Syndrome.

We are continuing to work as normally as possible during what is a very challenging time for everyone.

Failure to detect the novel retrovirus XMRV in chronic fatigue syndrome. Erlwein O et al.  Public Library of Science/PLoS ONE open access journal: January 2010. In October 2009, an American research group published a paper in Science which reported that they had found evidence of a new retrovirus called XMRV (xenotropic murine leukaemia virus-related virus) in […]

Pheby D and Saffron L.  Biology and Medicine (2009); 1 (4): 50 – 74   This very comprehensive questionnaire based research study was carried out by Dr Derek Pheby and colleagues at the Unit of Applied Epidemiology,  University of the West of England.

Representatives of the ME Association will be appearing in a radio phone-in show on BBC WM at lunchtime on Tuesday, December 1 – together with Natalie Tappy, from the Mid-Warwickshire ME Support Group, who has ME.

The ME Association have appointed Dr Ellen Goudsmit as a consultant on psychological issues. Dr Goudsmit is a registered health psychologist with a background in medical and psychological research.