Tag: ME Association

We have places available for the London Landmark’s Half-Marathon in 2021. Contact us if you would like to take part and help us to do more for people with M.E.!

The information in this new guide should be of help to people when managing post-Covid fatigue syndrome and post-Covid ME/CFS.

This week we feature a new study that examines acute Epstein Barr as a trigger and another that reports on use of IV Saline as a potential treatment.

This week 3 new research studies have been published and we highlight 2 of them.

Do you have a passion for M.E. research? We are seeking a suitable candidate to join our team and help report scientific advances to the patient community.

This week 5 new studies were published. We highlight 3 that include neuroimaging reviews, hypermobility and intracranial hypertension, and the economic cost of ME/CFS in Australia.

We have updated the central research index to provide you with all the relevant studies into ME/CFS. An interesting study was published in the last week from the ME Biobank team.

“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.

It is an authoritative publication representing the most comprehensive, evidence-based summary currently available.

Kara’s brilliant album, recorded from her sickbed, is performing exceptionally well in the charts. Download your copy today!

Complete lowdown on almost everything that’s happening in the ME/CFS world right now!

Help save your charity by taking part or supporting the Prudential My RideLondon event on 15 and 16 August!

This week we feature two published studies about ME/CFS which are about CBT and Mindfulness.

During the covid-19 lockdown, have you felt confident in the NHS’s ability to provide appropriate care and support as a person with ME/CFS?

Virtual meeting – please email your own MP and ask that they attend this important meeting

“Without doubt my biggest regret has been that I have not been able to have my own family.”

“The most frustrating aspect of sleep is the frequent inability to enter deep sleep. It feels like I only ever dream, and it is exhausting.”

Dr Charles Shepherd contributes to a new article about Covid-19 and possible Post-Viral Fatigue Syndrome.

We are continuing to work as normally as possible during what is a very challenging time for everyone.

Failure to detect the novel retrovirus XMRV in chronic fatigue syndrome. Erlwein O et al.  Public Library of Science/PLoS ONE open access journal: January 2010. In October 2009, an American research group published a paper in Science which reported that they had found evidence of a new retrovirus called XMRV (xenotropic murine leukaemia virus-related virus) in […]