Tag: ME Association

ME Association statement – XMRV: UK research group fails to replicate American findings

Failure to detect the novel retrovirus XMRV in chronic fatigue syndrome. Erlwein O et al.  Public Library of Science/PLoS ONE open access journal: January 2010. In October 2009, an American research group published a paper in Science which reported that they had found evidence of a new retrovirus called XMRV (xenotropic murine leukaemia virus-related virus) in […]

ME Association cited in Nursing Times review of new pacing DVD and booklet

The ME Association and our medical adviser, Dr Charles Shepherd, are both cited in a Nursing Times review this week – which looks at a new DVD and booklet package produced by the Shropshire Enablement Team at Telford and Wrekin Primary Care Trust to promote the use of pacing as a symptom control strategy for […]

Red sandstorms in Australia – part of cycle trip’s ‘rich tapestry’ for Eric

They’re holding a private disco in Aberdeen this weekend to help replenish the bank balance of Eric Smart, the 44-year-old cyclist who is riding from Aberdeen to Adelaide, Australia, in aid of The ME Association. At the moment, he’s in Coober Pedy, the Australian outback town which mines the world’s most valuable opals. The red […]

ME Association submission to the APPG Inquiry into NHS Services for people with ME

The All Party Parliamentary Group on ME Inquiry into NHS services for people with ME/CFS is now calling witnesses to give evidence before it. Dr Charles Shepherd, our medical adviser, answered questions this afternoon (Thursday July 9). Our written submission appears below. If you would like to download a 5-page pdf file of this document […]

Immunotherapy for ME/CFS

A number of drugs which act on the body’s immune system (immunomodulatory drugs) have been suggested as possible forms of treatment for sub-groups of people with ME/CFS.  These drugs include Ampligen, immunoglobulin, alpha interferon, inosine pranobex/Imunovir and tumour necrosis factor alpha inhibitors.  Unfortunately, the results from clinical trials so far have failed to demonstrate any really […]

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Welcome to The ME Association, also registered as The ME Society. We provide information, support and practical advice for people who are affected by ME/CFS/PVFS (Myalgic Encephalopathy/Chronic Fatigue Syndrome/Post Viral Fatigue Syndrome), their families and carers. We also fund and support research, and offer education and training. Learn about all aspects of ME/CFS, written specifically […]

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