Tag: ME Association

Virtual meeting – please email your own MP and ask that they attend this important meeting

“Without doubt my biggest regret has been that I have not been able to have my own family.”

“The most frustrating aspect of sleep is the frequent inability to enter deep sleep. It feels like I only ever dream, and it is exhausting.”

Dr Charles Shepherd contributes to a new article about Covid-19 and possible Post-Viral Fatigue Syndrome.

We are continuing to work as normally as possible during what is a very challenging time for everyone.

Failure to detect the novel retrovirus XMRV in chronic fatigue syndrome. Erlwein O et al.  Public Library of Science/PLoS ONE open access journal: January 2010. In October 2009, an American research group published a paper in Science which reported that they had found evidence of a new retrovirus called XMRV (xenotropic murine leukaemia virus-related virus) in […]

Pheby D and Saffron L.  Biology and Medicine (2009); 1 (4): 50 – 74   This very comprehensive questionnaire based research study was carried out by Dr Derek Pheby and colleagues at the Unit of Applied Epidemiology,  University of the West of England.

Representatives of the ME Association will be appearing in a radio phone-in show on BBC WM at lunchtime on Tuesday, December 1 – together with Natalie Tappy, from the Mid-Warwickshire ME Support Group, who has ME.

The ME Association have appointed Dr Ellen Goudsmit as a consultant on psychological issues. Dr Goudsmit is a registered health psychologist with a background in medical and psychological research.

The ME Association and our medical adviser, Dr Charles Shepherd, are both cited in a Nursing Times review this week – which looks at a new DVD and booklet package produced by the Shropshire Enablement Team at Telford and Wrekin Primary Care Trust to promote the use of pacing as a symptom control strategy for […]

This is a summary of key points to emerge from two meetings of The ME Association Board of Trustees. These meetings took place at our Head Office in Buckingham on Monday afternoon, 9 November 2009 and on Tuesday morning, 10 November 2009.  

ME Association fundraiser Eric Smart reached Adelaide in south Australia yesterday (Saturday 10 September 2009) – at the end of a 14,386-mile cycle ride from his home town in Aberdeen.

From BBC Online, 9 October 2009 US scientists say they have made a potential breakthrough in understanding what causes the condition known as chronic fatigue syndrome (CFS) or ME.

They’re holding a private disco in Aberdeen this weekend to help replenish the bank balance of Eric Smart, the 44-year-old cyclist who is riding from Aberdeen to Adelaide, Australia, in aid of The ME Association. At the moment, he’s in Coober Pedy, the Australian outback town which mines the world’s most valuable opals. The red […]

The ME Association has bought two guaranteed places in next year’s London Marathon. If you would like to be considered for one of them, please click on the following link and fill in the short form. We’re looking for runners who can raise the most money for the ME Association. Application Form

The All Party Parliamentary Group on ME Inquiry into NHS services for people with ME/CFS is now calling witnesses to give evidence before it. Dr Charles Shepherd, our medical adviser, answered questions this afternoon (Thursday July 9). Our written submission appears below. If you would like to download a 5-page pdf file of this document […]

A number of drugs which act on the body’s immune system (immunomodulatory drugs) have been suggested as possible forms of treatment for sub-groups of people with ME/CFS.  These drugs include Ampligen, immunoglobulin, alpha interferon, inosine pranobex/Imunovir and tumour necrosis factor alpha inhibitors.  Unfortunately, the results from clinical trials so far have failed to demonstrate any really […]

Welcome to The ME Association, also registered as The ME Society. We provide information, support and practical advice for people who are affected by ME/CFS/PVFS (Myalgic Encephalopathy/Chronic Fatigue Syndrome/Post Viral Fatigue Syndrome), their families and carers. We also fund and support research, and offer education and training. Learn about all aspects of ME/CFS, written specifically […]