ME and My Family – A Husband’s View of ME/CFS
“M.E. is a stealthy thief; it creeps into your life and steals whatever it can. It has stolen a wife, a mummy, and a strong and independent woman.”
Living with ME
The International ME/CFS Family Impact Study
Dr Muirhead and Cardiff University need to hear your experiences of how ME/CFS affects the Quality of Life of patients, carers, and family members.
Choose a Lou Wildish painting and put colour back into your life!
Lou Wildish has put a selection of her unique art into a new online gallery and is giving a donation from each sale to the ME Association.
Jessica Taylor-Bearman wins The People’s Book Prize!
‘A Girl Behind Dark Glasses’ has beaten 13 other books on the short list to win an award voted by readers themselves…
ME Awareness: Living with ME, Self-isolation and Severe Asthma, by Leanne Swift | 29 May 2020
“Worse is the fear of getting this nasty coronavirus. I know if I get it I could be in serious trouble, especially with the Asthma, but even with M.E…”
ME Awareness: “Ted Hughes once said: ‘Poetry needs a reason’. It would appear ME is my reason to write,” by Ffion | 29 May 2020
“Everyone is talking to everyone else and, with so many good people on our side, things will change for us.”
ME Awareness: ‘Dialogues for a neglected illness’ a Wellcome Project by Natalie Boulton and Josh Biggs | 27 May 2020
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
ME Awareness: “What you need,” he said, “is a job harvesting cabbages,” by Ruth Rookledge | 25 May 2020
“For about the next year or so I thought I must just be imagining an illness, that it was my fault, it wasn’t real…”
ME Awareness: “These lost years have been a grieving process; a loss of a past life that seems so far away,” Naomi Gilchrist | 24 May 2020
“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”
ME Awareness: “I would have been a terrific husband and father if not for ME,” by Russell Fleming | 22 May 2020
“Without doubt my biggest regret has been that I have not been able to have my own family.”
ME Awareness: “I have had symptoms of ME since I was a teenager – over 50 years ago,” by Ann Jones | 22 May 2020
“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”
ME Awareness: “I was training for the London Marathon, when I felt I’d got a virus that I couldn’t quite shift,” by Tracey Barraclough | 21 May 2020.
“It’s been a long two years coming to terms with M.E. and it’s still a work in progress.”
ME Awareness Press Release: Mum of tragic teen with devastating illness speaks out about years lost in lockdown | 18 May 2020
“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”
ME Awareness: Failure to accurately diagnose can lead to lifetime of misery and suffering by Debbie Mckno | 17 May 2020
“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”
ME Awareness: “While in many ways it was a relief to finally have a diagnosis, both I and my husband were devastated,” by Carolyn White | 17 May 2020
“I didn’t complete my degree but received sufficient qualifications to be ordained in September 2007.”
ME Awareness: “I suffered without help for so long, we went to every doctor and agency without answers,” by Ellyn Gould | 16 May 2020
“M.E. still affects every aspect of my life. Attending school was a huge hurdle for me and one I still struggle with.”
ME Awareness: “My worst symptom is the physical weakness in my whole body,” by Maddy | 14 May 2020
“To be a disabled person does not mean that you must solely be a wheelchair user or someone with a physical deformity.”
ME Awareness: John Milburn the solo Half-Marathon Runner and Pat Brown who sold her 1960s bike | 13 May 2020
Two stories from very generous supporters of the ME Association.
ME Awareness: “GP’s have not been given any training to recognise a patient with ME,” by Smita Dutta | 13 May 2020
“The GP’s I have seen treat everyone based on symptoms rather than the whole illness itself…”
ME Awareness: BBC News: Eastbourne mum with ME gets some life back after years lost in lockdown | 13 May 2020
Emma spent a decade in isolation at home after becoming severely ill with ME in 2004. She has been interviewed by the BBC together with Dr Shepherd.