Tag: Living with ME

“M.E. is a stealthy thief; it creeps into your life and steals whatever it can. It has stolen a wife, a mummy, and a strong and independent woman.”

Dr Muirhead and Cardiff University need to hear your experiences of how ME/CFS affects the Quality of Life of patients, carers, and family members.

Lou Wildish has put a selection of her unique art into a new online gallery and is giving a donation from each sale to the ME Association.

‘A Girl Behind Dark Glasses’ has beaten 13 other books on the short list to win an award voted by readers themselves…

“Worse is the fear of getting this nasty coronavirus. I know if I get it I could be in serious trouble, especially with the Asthma, but even with M.E…”

“Everyone is talking to everyone else and, with so many good people on our side, things will change for us.”

The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.

“For about the next year or so I thought I must just be imagining an illness, that it was my fault, it wasn’t real…”

“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”

“Without doubt my biggest regret has been that I have not been able to have my own family.”

“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”

“It’s been a long two years coming to terms with M.E. and it’s still a work in progress.”

“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”

“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”

“I didn’t complete my degree but received sufficient qualifications to be ordained in September 2007.”

“M.E. still affects every aspect of my life. Attending school was a huge hurdle for me and one I still struggle with.”

“To be a disabled person does not mean that you must solely be a wheelchair user or someone with a physical deformity.”

Two stories from very generous supporters of the ME Association.

“The GP’s I have seen treat everyone based on symptoms rather than the whole illness itself…”

Emma spent a decade in isolation at home after becoming severely ill with ME in 2004. She has been interviewed by the BBC together with Dr Shepherd.