“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”
“Too often we see fractures within the ME/CFS Community that are causing incredible damage to the very people who are on our ‘team’.”
“Worse is the fear of getting this nasty coronavirus. I know if I get it I could be in serious trouble, especially with the Asthma, but even with M.E…”
“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”
“I didn’t complete my degree but received sufficient qualifications to be ordained in September 2007.”
“To be a disabled person does not mean that you must solely be a wheelchair user or someone with a physical deformity.”
“Managing energy is the most difficult but important factor. My advice would be to try to establish a routine to get the best balance between sleep, activity and rest.”
Emma spent a decade in isolation at home after becoming severely ill with ME in 2004. She has been interviewed by the BBC together with Dr Shepherd.
Dr Shepherd provides an update and comprehensive guidance for people with ME/CFS.
Dr Shepherd updates on the situation and explains how you can help prevent the spread of this infection and minimise exposure.
Bill Clayton shares his experience of loneliness and how this aspect of M.E. affects him and others in the community.