M.E. changed his mum from “being called Tigger because she was always so full of life” to someone who now has to count every ounce of energy used in case it runs out and leaves her floored for days.
“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”
We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.
Holly aged 9, has written about her mum, Chantalle, and explains what life is like being the daughter of a parent with M.E.
“I guess my Christian faith sustains me even though a lot of the time I feel like I’m just holding on with my fingertips.”
“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”
Emma spent a decade in isolation at home after becoming severely ill with ME in 2004. She has been interviewed by the BBC together with Dr Shepherd.
For ME Awareness, the ME Association will be featuring stories from people with M.E. every day throughout May.
Dr Charles Shepherd provides updated information about the virus and how you can help prevent infection.
“My life has completely changed. I try to explain how it feels, it’s like a past life really.”
A woman left bedbound with an incurable illness revealed her fight simply to be believed.
Laura, now 25, has chosen to lay bare the brutal reality of life with M.E. – which affects 250,000 people in the UK.