M.E. changed his mum from “being called Tigger because she was always so full of life” to someone who now has to count every ounce of energy used in case it runs out and leaves her floored for days.
Tag: Housebound
Severe ME: Why is improvement subject to such harsh judgement and not celebrated?
“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”
The Untold Stories: Severe ME Week 2020
We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.
My Mummy and M.E. by Holly Peretti
Holly aged 9, has written about her mum, Chantalle, and explains what life is like being the daughter of a parent with M.E.
ME Awareness: The Lost Years: Missionary forced to give up vocation to do battle with ME | 18 May 2020
“I guess my Christian faith sustains me even though a lot of the time I feel like I’m just holding on with my fingertips.”
ME Awareness Press Release: Mum of tragic teen with devastating illness speaks out about years lost in lockdown | 18 May 2020
“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”
ME Awareness: BBC News: Eastbourne mum with ME gets some life back after years lost in lockdown | 13 May 2020
Emma spent a decade in isolation at home after becoming severely ill with ME in 2004. She has been interviewed by the BBC together with Dr Shepherd.
ME Awareness Press Release: Brits with devastating illness speak out about years lost in lockdown | 01 May 2020
For ME Awareness, the ME Association will be featuring stories from people with M.E. every day throughout May.
ME Association Guidance: Coronavirus (covid-19) Update | 09 March 2020
Dr Charles Shepherd provides updated information about the virus and how you can help prevent infection.
Former weightlifter from Pendle tells how illness left her unable to get out of bed | 13 January 2020
“My life has completely changed. I try to explain how it feels, it’s like a past life really.”
ME sufferer was told by doctors condition was ‘in her head’ | 06 January 2020
A woman left bedbound with an incurable illness revealed her fight simply to be believed.
The Sun: TRAPPED I’ve spent six years in a dark bedroom after virus triggered ME at 16 – but docs say it’s ‘all in my head’ | 09 August 2019
Laura, now 25, has chosen to lay bare the brutal reality of life with M.E. – which affects 250,000 people in the UK.