MEAW 2021: Health and Social Care Awareness Campaign
It is ME Awareness Week in May and we’ll be focusing on health and social care against the background of the new NICE clinical guideline for ME/CFS.
Healthcare
Get Ready for The Big Give Christmas Appeal! It’s Only 2 Weeks Away…
In the first week of December, any donation to the Big Give Appeal will be doubled! Help us to change the medical mindset within the NHS…
The Untold Stories: Severe ME Week 2020
We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.
Severe ME Week: How might healthcare be improved?
In this introduction you will find a discussion about the need for suitable healthcare. Also background about severe and very severe M.E. and the support that is available.
Update: Post-Covid Fatigue, Post/Long-Covid Syndromes, and ME/CFS
Dr Charles Shepherd explains why we have been devoting so much time and effort to covering issues relating to Post-COVID Syndromes.
Clinician’s Letter to NICE Results in Statement on Graded Exercise for Post-Covid-Syndrome
In response to a letter from Drs. Shepherd and Weir, NICE produced a statement about graded exercise therapy for Post-Covid management.
ME Association Monthly Poll: Your Confidence in the NHS During Covid-19 Lockdown
During the covid-19 lockdown, have you felt confident in the NHS’s ability to provide appropriate care and support as a person with ME/CFS?
The New NICE Clinical Guideline on ME/CFS to be Published in April 2021
The new and influential NICE guideline will be sent to stakeholders for review in November before publication on 21 April 2021.
“A post-viral tsunami is hitting our health services, yet in the UK it doesn’t even seem to be on the national agenda.”
Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.
ME Awareness: Covid-19, Chronic Illness and Unacknowledged Loss by Joanne Hunt | 04 May 2020
“I suspect that the losses faced by many people with M.E. are in some ways uniquely different to almost every other patient group.”
What do you think good healthcare for M.E. should look like in Scotland? | 26 February 2020
What would you like healthcare for M.E. to look like in Scotland? Take part in this important SHC survey.
Statement: What’s next for the All-Party Parliamentary Group on ME? | 19 February 2020
We review what happened at the first meeting and list the MPs that attended. Biomedical research is on the agenda for the next APPG meeting in March.
Amended Cochrane Review: ‘Exercise therapy for chronic fatigue syndrome’ | 03 October 2019
The influential Cochrane organisation has published an updated review and issued a statement following concerns expressed by the patient community.