ME and My Family – A Husband’s View of ME/CFS
“M.E. is a stealthy thief; it creeps into your life and steals whatever it can. It has stolen a wife, a mummy, and a strong and independent woman.”
GP
Covid Vaccinations and ME/CFS: Community Feedback!
We provide a summary of the feedback received from people with ME/CFS who have had the vaccine or who have tried to get the vaccine as a priority.
Get Ready for The Big Give Christmas Appeal! It’s Only 2 Weeks Away…
In the first week of December, any donation to the Big Give Appeal will be doubled! Help us to change the medical mindset within the NHS…
ME Association Leaflet: The Flu and Pneumonia Vaccines 2020 – 2021 & Website Poll of Flu Vaccine Reactions in ME/CFS
We have a new free leaflet on this year’s Flu Vaccination, and a Website Poll asking you about any reactions you might have had to the vaccine.
The ME Association Pneumonia and the Pneumococcal vaccine – do you need this protection?
Dr Shepherd answers a question about the pneumonia vaccine and provides the information you need to make an informed decision.
New Free Leaflet: The ME Association Guide to Post-Covid Fatigue Syndromes and Post-Covid ME/CFS
The information in this new guide should be of help to people when managing post-Covid fatigue syndrome and post-Covid ME/CFS.
The ME Association Flu Vaccine Information and Guidance for 2020 – 2021
We will shortly be updating our free leaflet on the Flu Vaccine and M.E. But we hope this information proves helpful in the meantime.
Can you help Cornwall’s NHS ME/CFS Specialist Service find a medical consultant to join their team?
Having a consultant physician as part of a ME/CFS clinical team is essential. This is a fantastic opportunity to join one of the best NHS services in the country.
ME Association Monthly Poll: Your Confidence in the NHS During Covid-19 Lockdown
During the covid-19 lockdown, have you felt confident in the NHS’s ability to provide appropriate care and support as a person with ME/CFS?
ME Awareness: “These lost years have been a grieving process; a loss of a past life that seems so far away,” Naomi Gilchrist | 24 May 2020
“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”
ME Awareness: “I was training for the London Marathon, when I felt I’d got a virus that I couldn’t quite shift,” by Tracey Barraclough | 21 May 2020.
“It’s been a long two years coming to terms with M.E. and it’s still a work in progress.”
ME Awareness: “I went to my GP to be told that M.E. did not exist as a recognised illness!” by Wend Jordan | 20 May 2020
“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”
ME Awareness: Failure to accurately diagnose can lead to lifetime of misery and suffering by Debbie Mckno | 17 May 2020
“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”
ME Awareness: “When my youngest was 11, he asked me if I was going to die. I was horrified,” by Theresa Baynham | 13 May 2020
“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”
ME Awareness: New CPD Training Course for Medical Professionals about ME/CFS | 12 May 2020
The online course can be taken by anyone with a professional interest in ME/CFS and will hopefully increase awareness and understanding.
Huffington Post: Covid-19 Is Leaving People With Serious Fatigue – What Can You Do About It?
Dr Charles Shepherd contributes to a new article about Covid-19 and possible Post-Viral Fatigue Syndrome.
MEA Website Survey: Why are we asking about doctor-patient relations in this month’s survey?
What is your relationship like with your GP? Dr Shepherd will use the feedback we receive when talking with NICE and will also help answer questions on MEA Facebook this week.
The picture that hides illness that can make young woman feel like she has run a marathon after two bottles of wine | 18 December 2019
Catherine Allen, 22, was initially told she was just tired like most teenagers until she was diagnosed