During the covid-19 lockdown, have you felt confident in the NHS’s ability to provide appropriate care and support as a person with ME/CFS?
“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”
“It’s been a long two years coming to terms with M.E. and it’s still a work in progress.”
“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”
“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”
“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”
The online course can be taken by anyone with a professional interest in ME/CFS and will hopefully increase awareness and understanding.
Dr Charles Shepherd contributes to a new article about Covid-19 and possible Post-Viral Fatigue Syndrome.
What is your relationship like with your GP? Dr Shepherd will use the feedback we receive when talking with NICE and will also help answer questions on MEA Facebook this week.
Catherine Allen, 22, was initially told she was just tired like most teenagers until she was diagnosed