The International ME/CFS Family Impact Study
Dr Muirhead and Cardiff University need to hear your experiences of how ME/CFS affects the Quality of Life of patients, carers, and family members.
Family
Sarah returns to the beginning for her ‘Super Six’ challenge for the ME Association
Sarah Elsby has begun her impressive walking challenge in support of her mother who has M.E. Please donate and help the ME Association do more for this vulnerable community.
London Landmarks Half Marathon 2021: help us rebuild our running team!
We have 20 guaranteed places for the 2021 London Half-Marathon. We’re calling for all able-bodied enthusiasts to please get in touch!
Sonja’s mile a day for the MEA keeps her worry at bay
“I try to walk a mile a day. There are some days that my legs and brain don’t quite connect. That’s when it becomes quite interesting!”
A long cross-country walk dedicated to his mum and to the ME Association
M.E. changed his mum from “being called Tigger because she was always so full of life” to someone who now has to count every ounce of energy used in case it runs out and leaves her floored for days.
My Mummy and M.E. by Holly Peretti
Holly aged 9, has written about her mum, Chantalle, and explains what life is like being the daughter of a parent with M.E.
ME Awareness: “I would have been a terrific husband and father if not for ME,” by Russell Fleming | 22 May 2020
“Without doubt my biggest regret has been that I have not been able to have my own family.”
ME Awareness: “I have had symptoms of ME since I was a teenager – over 50 years ago,” by Ann Jones | 22 May 2020
“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”
ME Awareness: “I went to my GP to be told that M.E. did not exist as a recognised illness!” by Wend Jordan | 20 May 2020
“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”
ME Awareness Press Release: Mum of tragic teen with devastating illness speaks out about years lost in lockdown | 18 May 2020
“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”
ME Awareness: “I suffered without help for so long, we went to every doctor and agency without answers,” by Ellyn Gould | 16 May 2020
“M.E. still affects every aspect of my life. Attending school was a huge hurdle for me and one I still struggle with.”
ME Awareness: “ME is a cruel illness and whether we have it mild or severe, we all still suffer,” by Naomi Gilchrist | 15 May 2020
“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”
ME Awareness: “When my youngest was 11, he asked me if I was going to die. I was horrified,” by Theresa Baynham | 13 May 2020
“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”
ME Awareness: The Lost Years and Rediscovery by Kate Stanforth | 12 May 2020
“I’d like to say once I got the diagnosis, things got easier, but they didn’t. I ended up bedbound then ultimately paralysed in some of the darkest days I’ve experienced.”
ME Awareness: The Lost Years by Stephen Powell | 09 May 2020
“Positives are there but, in the depths of this dreadful disorder, sometimes they are very hard to see.”
ME Awareness: The Lost Years by Smita Dutta | 06 May 2020
“While writing this I am again thinking, “Why me?” I do not know when I am going to stop thinking about his question, maybe I never will.”
ME Awareness: The Lost Years by Holly O’Brien | 02 May 2020
“I grieve for the old me, while managing the situation I am currently in, and looking into the future and questioning, will I ever be well enough?”
ME Awareness Press Release: Brits with devastating illness speak out about years lost in lockdown | 01 May 2020
For ME Awareness, the ME Association will be featuring stories from people with M.E. every day throughout May.
The picture that hides illness that can make young woman feel like she has run a marathon after two bottles of wine | 18 December 2019
Catherine Allen, 22, was initially told she was just tired like most teenagers until she was diagnosed
Tips for coping with Severe M.E. by Laura Brockway | 06 August 2019
This year marks 10 years of M.E for me. With 6 1/2 of those being severe, I wanted to write a little something that might help others cope.