“It is incessant, inescapable torture. You are trapped. Completely powerless. You’re in agony with countless unbearable symptoms…”
“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”
“Managing energy is the most difficult but important factor. My advice would be to try to establish a routine to get the best balance between sleep, activity and rest.”
“Since the coronavirus started to spread I have cancelled all my support because I wanted to be completely isolated.”
“The first big challenge was when I became wheelchair-bound 3 years ago. The next loss was when I could no longer read or watch a film.”
Evidence is mounting that Covid-19 infection might lead to instances of PVFS meaning we may see an increase in cases of Myalgic Encephalomyelitis.
Dr Sarah Jarvis talks The Sun through the main signs your exhaustion could actually be a symptom of ME/CFS.
Anonymity is a cover for the disappointment that is only overwhelmed by the relentless exhaustion of M.E.
“Most days she is in bed, but we try to make life as normal as it can be for her. We have to stay strong for her.”