ME and Post-Exertional Malaise: “It is much more than fatigue and stiffness…”
We hear from someone with severe ME who describes what Post-Exertional Malaise feels like and the measures that can help when in this situation…
Energy
How it feels to have Very Severe M.E. by Ruth Braham
“It is incessant, inescapable torture. You are trapped. Completely powerless. You’re in agony with countless unbearable symptoms…”
ME Awareness: ME Symptoms and Management by Ann Jones | 14 May 2020
“Managing energy is the most difficult but important factor. My advice would be to try to establish a routine to get the best balance between sleep, activity and rest.”
ME Awareness: The Lost Years by Stephen Powell | 09 May 2020
“Positives are there but, in the depths of this dreadful disorder, sometimes they are very hard to see.”
MEA Summary Review: Is mystery factor in plasma causing viral immunity in ME/CFS? | 06 May 2020
“This provides an explanation for the common observation that ME/CFS patients often report a sharp decrease in the number of colds and other viral infections they experience…”
MEA Summary Review: The Role of Mitochondria in ME/CFS | 13 July 2019
This latest review looks at energy production, and the ongoing search for clues as to what might be causing problems in ME/CFS.