We hear from someone with severe ME who describes what Post-Exertional Malaise feels like and the measures that can help when in this situation…
“It is incessant, inescapable torture. You are trapped. Completely powerless. You’re in agony with countless unbearable symptoms…”
“Managing energy is the most difficult but important factor. My advice would be to try to establish a routine to get the best balance between sleep, activity and rest.”
“Positives are there but, in the depths of this dreadful disorder, sometimes they are very hard to see.”
“This provides an explanation for the common observation that ME/CFS patients often report a sharp decrease in the number of colds and other viral infections they experience…”
This latest review looks at energy production, and the ongoing search for clues as to what might be causing problems in ME/CFS.