MEAW 2021: Health and Social Care Awareness Campaign
It is ME Awareness Week in May and we’ll be focusing on health and social care against the background of the new NICE clinical guideline for ME/CFS.
Diagnosis
Thank you for helping with our formal response to NICE!
The ME Association has submitted its formal response to NICE as part of the stakeholder consultation for the new ME/CFS clinical guideline.
BMJ Rapid Response: Long-Covid & ME/CFS by Dr Nina Muirhead
Nina Muirhead, SAS Doctor Dermatology Surgery, Buckinghamshire Healthcare NHS Trust, Amersham Hospital, Whielden Street Extracts Re: Long covid: doctors must assess and investigate patients properly Dear Editor, I strongly echo …
BMJ Rapid Response: Long-Covid & ME/CFS by Dr Nina Muirhead Read More »
BMJ: NICE backtracks on graded exercise therapy and CBT in draft revision to CFS guidance
Graded exercise therapy should no longer be offered for the treatment of ME/CFS, says NICE in its draft clinical guidelines.
NICE Press Statement & Media Coverage of New Clinical Guideline on ME/CFS
The new NICE guideline has removed graded exercise as a recommended management option…
All-Party Parliamentary Group on M.E. Invite Your MP to Attend November Meeting
Please invite your MP to the next APPG on ME meeting. We’re discussing diagnosis, management and the new NICE clinical guideline on ME/CFS.
ME charity adviser says Scotland lags behind rest of UK in providing help for long Covid patients
“We do know long Covid does not stop at the Scottish border. We need specialist clinics to get diagnostics in place and see if and how we can treat people.” Dr Charles Shepherd.
New ME/CFS Medical Education Initiative Launched in Scotland
New medical education initiative launched in Scotland by collaboration of charities including the ME Association and the CMRC Medical Education Group.
ME Association New Free Leaflet – The Importance of Early & Accurate Diagnosis in ME/CFS
A new FREE 6-page leaflet that helps determine what is required to make an early and accurate diagnosis of ME/CFS.
New Free Leaflet: The ME Association Guide to Post-Covid Fatigue Syndromes and Post-Covid ME/CFS
The information in this new guide should be of help to people when managing post-Covid fatigue syndrome and post-Covid ME/CFS.
Early Day Motion: Researching and supporting people with long Covid-19 symptoms
Carol Monaghan has tabled an Early Day Motion that we would like you to encourage your own MPs to support. A template email is included for you to use.
Medscape: Small-Fiber Polyneuropathy May Underlie Dysautonomia in ME/CFS
These potentially important findings were presented by Ryan Whelan from the Simmaron Research Institute at the recent IACFS/ME virtual conference.
Can you help Cornwall’s NHS ME/CFS Specialist Service find a medical consultant to join their team?
Having a consultant physician as part of a ME/CFS clinical team is essential. This is a fantastic opportunity to join one of the best NHS services in the country.
Sonja’s mile a day for the MEA keeps her worry at bay
“I try to walk a mile a day. There are some days that my legs and brain don’t quite connect. That’s when it becomes quite interesting!”
Now Available: The 2020 ME Association ME/CFS/PVFS Clinical and Research Guide!
It is an authoritative publication representing the most comprehensive, evidence-based summary currently available.
Severe ME: Why is improvement subject to such harsh judgement and not celebrated?
“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”
The Untold Stories: Severe ME Week 2020
We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.
A challenge where YOU can help to drive change in medical attitudes towards ME!
Pledge your support for the Big Give Challenge and help us to continue our campaign of accurate and timely information to health professionals!
For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on
New Statesman: For #LongCovid sufferers – around 5 per cent of those who catch the disease – debilitating symptoms drag on interminably.
ME, Myself and I: Caution and Controversy
“Too often we see fractures within the ME/CFS Community that are causing incredible damage to the very people who are on our ‘team’.”