Blog Survey: Requesting information about your ME/CFS Diagnosis
Blog Survey: Requesting information about your ME/CFS Diagnosis Read More »
ME/CFS (myalgic encephalomyelitis or encephalopathy/chronic fatigue syndrome) is a complex […]
Diagnosis
BMJ Rapid Response: Long-Covid & ME/CFS by Dr Nina Muirhead
BMJ Rapid Response: Long-Covid & ME/CFS by Dr Nina Muirhead Read More »
Nina Muirhead, SAS Doctor Dermatology Surgery, Buckinghamshire Healthcare NHS Trust,
BMJ: NICE backtracks on graded exercise therapy and CBT in draft revision to CFS guidance
Graded exercise therapy should no longer be offered for the treatment of ME/CFS, says NICE in its draft clinical guidelines.
NICE Press Statement & Media Coverage of New Clinical Guideline on ME/CFS
NICE Press Statement & Media Coverage of New Clinical Guideline on ME/CFS Read More »
The new NICE guideline has removed graded exercise as a recommended management option…
ME charity adviser says Scotland lags behind rest of UK in providing help for long Covid patients
“We do know long Covid does not stop at the Scottish border. We need specialist clinics to get diagnostics in place and see if and how we can treat people.” Dr Charles Shepherd.
New ME/CFS Medical Education Initiative Launched in Scotland
New ME/CFS Medical Education Initiative Launched in Scotland Read More »
New medical education initiative launched in Scotland by collaboration of charities including the ME Association and the CMRC Medical Education Group.
Medscape: Small-Fiber Polyneuropathy May Underlie Dysautonomia in ME/CFS
Medscape: Small-Fiber Polyneuropathy May Underlie Dysautonomia in ME/CFS Read More »
These potentially important findings were presented by Ryan Whelan from the Simmaron Research Institute at the recent IACFS/ME virtual conference.
For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on
For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on Read More »
New Statesman: For #LongCovid sufferers – around 5 per cent of those who catch the disease – debilitating symptoms drag on interminably.
The Sun: NHS faces ‘post coronavirus tsunami’ as survivors are struck by ME, docs warn
The Sun: NHS faces ‘post coronavirus tsunami’ as survivors are struck by ME, docs warn Read More »
The ME Association said many people are asking whether or not their post-Covid fatigue could be developing into ME.
‘Dialogues for a neglected illness’ a Wellcome Project by Natalie Boulton and Josh Biggs | 27 May 2020
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
ME Awareness: The Lost Years by Wendy Coxhill | 11 May 2020
ME Awareness: The Lost Years by Wendy Coxhill | 11 May 2020 Read More »
“The first big challenge was when I became wheelchair-bound 3 years ago. The next loss was when I could no longer read or watch a film.”
Huffington Post: Covid-19 Is Leaving People With Serious Fatigue – What Can You Do About It?
Dr Charles Shepherd contributes to a new article about Covid-19 and possible Post-Viral Fatigue Syndrome.
Coronavirus and ME by Rebecca Smith | 07 May 2020
Coronavirus and ME by Rebecca Smith | 07 May 2020 Read More »
“I have spoken to 111 several more times as my chest was worse but have been told to stay in bed for 1-2 more weeks and even minimise talking if necessary.”
MEA Summary Review: Is mystery factor in plasma causing viral immunity in ME/CFS? | 06 May 2020
“This provides an explanation for the common observation that ME/CFS patients often report a sharp decrease in the number of colds and other viral infections they experience…”
America: Study finds many youth living with undiagnosed chronic fatigue syndrome | 24 January 2020
“We’re trying to help people who have this illness have information that could be used to argue for more resources for diagnosis and treatment,” Prof Leonard Jason.