“Too often we see fractures within the ME/CFS Community that are causing incredible damage to the very people who are on our ‘team’.”
The ME Association said many people are asking whether or not their post-Covid fatigue could be developing into ME.
The new and influential NICE guideline will be sent to stakeholders for review in November before publication on 21 April 2021.
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
“There is abundant evidence that ME/CFS can follow apparently infectious illnesses of uncertain cause, or a clearly diagnosed infectious illness…”
“For about the next year or so I thought I must just be imagining an illness, that it was my fault, it wasn’t real…”
“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”
“It should have been the beginnings of my life instead it was the other way around. I was to lose all my 20’s and 30’s to this illness.”
“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”
Helen Leonard-Williams and Helen McLean entered the Headshave Hall of Fame after they let the scissors loose during ME Awareness Week.
“It’s been a long two years coming to terms with M.E. and it’s still a work in progress.”
“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”
A north Somerset couple have been swimming the length of the English Channel at home to help save a charity that supports their daughter.
“I guess my Christian faith sustains me even though a lot of the time I feel like I’m just holding on with my fingertips.”
“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”
“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”
“I didn’t complete my degree but received sufficient qualifications to be ordained in September 2007.”
“M.E. still affects every aspect of my life. Attending school was a huge hurdle for me and one I still struggle with.”
“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”
“The GP’s I have seen treat everyone based on symptoms rather than the whole illness itself…”