It is ME Awareness Week in May and we’ll be focusing on health and social care against the background of the new NICE clinical guideline for ME/CFS.
The ME Association has submitted its formal response to NICE as part of the stakeholder consultation for the new ME/CFS clinical guideline.
Nina Muirhead, SAS Doctor Dermatology Surgery, Buckinghamshire Healthcare NHS Trust, Amersham Hospital, Whielden Street Extracts Re: Long covid: doctors must assess and investigate patients properly Dear Editor, I strongly echo this sentiment from my long COVID colleagues about assessing and investigating patients properly and would like to add that doctors must also diagnose patients properly. […]
Graded exercise therapy should no longer be offered for the treatment of ME/CFS, says NICE in its draft clinical guidelines.
The new NICE guideline has removed graded exercise as a recommended management option…
Please invite your MP to the next APPG on ME meeting. We’re discussing diagnosis, management and the new NICE clinical guideline on ME/CFS.
“We do know long Covid does not stop at the Scottish border. We need specialist clinics to get diagnostics in place and see if and how we can treat people.” Dr Charles Shepherd.
New medical education initiative launched in Scotland by collaboration of charities including the ME Association and the CMRC Medical Education Group.
A new FREE 6-page leaflet that helps determine what is required to make an early and accurate diagnosis of ME/CFS.
The information in this new guide should be of help to people when managing post-Covid fatigue syndrome and post-Covid ME/CFS.
Carol Monaghan has tabled an Early Day Motion that we would like you to encourage your own MPs to support. A template email is included for you to use.
These potentially important findings were presented by Ryan Whelan from the Simmaron Research Institute at the recent IACFS/ME virtual conference.
Having a consultant physician as part of a ME/CFS clinical team is essential. This is a fantastic opportunity to join one of the best NHS services in the country.
“I try to walk a mile a day. There are some days that my legs and brain don’t quite connect. That’s when it becomes quite interesting!”
It is an authoritative publication representing the most comprehensive, evidence-based summary currently available.
“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”
We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.
Pledge your support for the Big Give Challenge and help us to continue our campaign of accurate and timely information to health professionals!
New Statesman: For #LongCovid sufferers – around 5 per cent of those who catch the disease – debilitating symptoms drag on interminably.
“Too often we see fractures within the ME/CFS Community that are causing incredible damage to the very people who are on our ‘team’.”