Tag: Countess of Mar

Influential campaign group calls for graded exercise warning to be put on existing NICE guideline for ME/CFS.

The latest meeting including an excellent discussion with Sean O’Niell about ways in which ME might feature more often in the media.

Forward-ME has issued a position statement and expressed concern about spinal surgery and ME.

NICE has confirmed that the Chronic Pain Guideline and recommendations do not apply to people with a diagnosis of ME/CFS.

Carol Monaghan has tabled an Early Day Motion that we would like you to encourage your own MPs to support. A template email is included for you to use.

This letter is now available for anyone to download and share to help raise awareness of Post-Covid management and the similarities with M.E.

The responses from Chris Whitty at the Department of Health and Social Care and Stephen Powis at NHS England to ME Association concerns, were very disappointing.

“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.

Complete lowdown on almost everything that’s happening in the ME/CFS world right now!

We provide support, reliable information, a voice when needed, and funding for medical research.