“M.E. is a stealthy thief; it creeps into your life and steals whatever it can. It has stolen a wife, a mummy, and a strong and independent woman.”
It is ME Awareness Week in May and we’ll be focusing on health and social care against the background of the new NICE clinical guideline for ME/CFS.
This week we review 4 new research studies that have been published about ME/CFS.
We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.
“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”
“Yes, school was good, no I wasn’t lying. I just wanted to die. I didn’t care, I was happy to just slip away to stop existing. I was ten years old!”
“No human being can endure what we endure as M.E. sufferers and come away unscathed.”