ME and My Family – A Husband’s View of ME/CFS
“M.E. is a stealthy thief; it creeps into your life and steals whatever it can. It has stolen a wife, a mummy, and a strong and independent woman.”
children
MEAW 2021: Health and Social Care Awareness Campaign
It is ME Awareness Week in May and we’ll be focusing on health and social care against the background of the new NICE clinical guideline for ME/CFS.
The ME Association Research Round-up
This week we review 4 new research studies that have been published about ME/CFS.
The Untold Stories: Severe ME Week 2020
We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.
ME Awareness Press Release: Mum of tragic teen with devastating illness speaks out about years lost in lockdown | 18 May 2020
“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”
ME Awareness: The Lost Years by Samantha Whittingham | 03 May 2020
“Yes, school was good, no I wasn’t lying. I just wanted to die. I didn’t care, I was happy to just slip away to stop existing. I was ten years old!”
The Emotional Impact of a Long-term Physical Illness by Anna Redshaw | 08 July 2019
“No human being can endure what we endure as M.E. sufferers and come away unscathed.”