BMJ: NICE backtracks on graded exercise therapy and CBT in draft revision to CFS guidance
Graded exercise therapy should no longer be offered for the treatment of ME/CFS, says NICE in its draft clinical guidelines.
CBT
ME Association response to BACME Position Statement on the Management of ME/CFS
The ME Association has given a cautious welcome to the BACME position statement, but still has a number of concerns and questions.
ME Association Statement on the NICE clinical guideline for ME/CFS and the NICE guideline for Post/Long Covid-19
In this statement we explain why we have been working to help people with Post/Long Covid and how these syndromes overlap with ME/CFS.
The ME Association Research Round-up
This week we review 4 new research studies that have been published about ME/CFS.
Paul Garner on long haul covid-19—Don’t try to dominate this virus, accommodate it!
Paul Garner continues his BMJ Blog, explaining his experiences with Long-Covid and calls for appropriate guidance and support.
The ME Association End of Week Research Round-up
This week we feature two published studies about ME/CFS which are about CBT and Mindfulness.
More people in Notts are living with painful ‘invisible’ condition fibromyalgia | 07 January 2020
The number of people in Nottinghamshire suffering from fibromyalgia has soared in recent years, according to new NHS figures.
Amended Cochrane Review: ‘Exercise therapy for chronic fatigue syndrome’ | 03 October 2019
The influential Cochrane organisation has published an updated review and issued a statement following concerns expressed by the patient community.
My daughter and the pervasive dangers of PACE in paediatric M.E. by Adam Johnson | 06 August 2019
Zoe was put under surveillance – monitors, lights on constantly, nurses watching her eat and humiliatingly insisting on escorting her to the loo…
The Guardian: ME and the perils of internet activism | 29 July 2019
This latest article continues to shine an uncritical spotlight on an issue that we really don’t think stands up to scrutiny…