We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.
Tag: Carer
ME Awareness: “I have had symptoms of ME since I was a teenager – over 50 years ago,” by Ann Jones | 22 May 2020
“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”
ME Awareness: “ME is a cruel illness and whether we have it mild or severe, we all still suffer,” by Naomi Gilchrist | 15 May 2020
“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”
ME Awareness: ME Symptoms and Management by Ann Jones | 14 May 2020
“Managing energy is the most difficult but important factor. My advice would be to try to establish a routine to get the best balance between sleep, activity and rest.”
ME Awareness: Let us contact your GP or other healthcare professional and keep them informed about ME | 13 May 2020
We want to increase the flow of information to GPs and other healthcare professionals about M.E.
ME Awareness: The Coronavirus lockdown and ME by Pamela Lap | 12 May 2020
“Since the coronavirus started to spread I have cancelled all my support because I wanted to be completely isolated.”
ME Awareness: The Lost Years by Wendy Coxhill | 11 May 2020
“The first big challenge was when I became wheelchair-bound 3 years ago. The next loss was when I could no longer read or watch a film.”
ME Awareness: Covid-19, Chronic Illness and Unacknowledged Loss by Joanne Hunt | 04 May 2020
“I suspect that the losses faced by many people with M.E. are in some ways uniquely different to almost every other patient group.”
ME Carers Connected: Let us put you in touch with other carers | 30 April 2020
ME Carers Connected can help put carers in touch with one another for mutual support and to share experiences.
Share Your Stories for ME Awareness Week: The Lost Years and a Focus on Symptoms| 06 March 2020
Sharing your story is one of the best ways we have of improving understanding and awareness of M.E.
Severe ME Day: Life in a Nursing Home, Light Sensitivity and Very Severe M.E. by Eira Stuart | 08 August 2019
The nursing home was accommodating at first. However, they didn’t have any experience caring for M.E patients and I don’t think they fully realised the extent of the situation.
Severe ME Day: A Call to Act with Truth and Integrity by Greg Crowhurst | 08 August 2019
The impact of these last three decades of attempts to bury the serious disease M.E. under a sea of unrelated and vague “fatigue conditions” has been catastrophic for patients.