MEAW 2021: Health and Social Care Awareness Campaign
It is ME Awareness Week in May and we’ll be focusing on health and social care against the background of the new NICE clinical guideline for ME/CFS.
Carer
The Untold Stories: Severe ME Week 2020
We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.
ME Awareness: “I have had symptoms of ME since I was a teenager – over 50 years ago,” by Ann Jones | 22 May 2020
“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”
ME Awareness: “ME is a cruel illness and whether we have it mild or severe, we all still suffer,” by Naomi Gilchrist | 15 May 2020
“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”
ME Awareness: ME Symptoms and Management by Ann Jones | 14 May 2020
“Managing energy is the most difficult but important factor. My advice would be to try to establish a routine to get the best balance between sleep, activity and rest.”
ME Awareness: Let us contact your GP or other healthcare professional and keep them informed about ME | 13 May 2020
We want to increase the flow of information to GPs and other healthcare professionals about M.E.
ME Awareness: The Coronavirus lockdown and ME by Pamela Lap | 12 May 2020
“Since the coronavirus started to spread I have cancelled all my support because I wanted to be completely isolated.”
ME Awareness: The Lost Years by Wendy Coxhill | 11 May 2020
“The first big challenge was when I became wheelchair-bound 3 years ago. The next loss was when I could no longer read or watch a film.”
ME Awareness: Covid-19, Chronic Illness and Unacknowledged Loss by Joanne Hunt | 04 May 2020
“I suspect that the losses faced by many people with M.E. are in some ways uniquely different to almost every other patient group.”
ME Carers Connected: Let us put you in touch with other carers | 30 April 2020
ME Carers Connected can help put carers in touch with one another for mutual support and to share experiences.
Share Your Stories for ME Awareness Week: The Lost Years and a Focus on Symptoms| 06 March 2020
Sharing your story is one of the best ways we have of improving understanding and awareness of M.E.
Severe ME Day: Life in a Nursing Home, Light Sensitivity and Very Severe M.E. by Eira Stuart | 08 August 2019
The nursing home was accommodating at first. However, they didn’t have any experience caring for M.E patients and I don’t think they fully realised the extent of the situation.
Severe ME Day: A Call to Act with Truth and Integrity by Greg Crowhurst | 08 August 2019
The impact of these last three decades of attempts to bury the serious disease M.E. under a sea of unrelated and vague “fatigue conditions” has been catastrophic for patients.