It is ME Awareness Week in May and we’ll be focusing on health and social care against the background of the new NICE clinical guideline for ME/CFS.
Tag: Care
Get Ready for The Big Give Christmas Appeal! It’s Only 2 Weeks Away…
In the first week of December, any donation to the Big Give Appeal will be doubled! Help us to change the medical mindset within the NHS…
What do you think about the new NICE Clinical Guideline on ME/CFS?
The NICE stakeholder consultation process begins today. You can take part and help produce the new clinical guideline on ME/CFS…
NICE Press Statement & Media Coverage of New Clinical Guideline on ME/CFS
The new NICE guideline has removed graded exercise as a recommended management option…
Can you help Cornwall’s NHS ME/CFS Specialist Service find a medical consultant to join their team?
Having a consultant physician as part of a ME/CFS clinical team is essential. This is a fantastic opportunity to join one of the best NHS services in the country.
MEA Statement: NHS England Guidance on the Management of Post-Covid Fatigue Syndromes
The serious concerns expressed by the MEA about the Covid recovery guideline resulted in a reply from NHS England and an article in The Times newspaper.
How it feels to have Very Severe M.E. by Ruth Braham
“It is incessant, inescapable torture. You are trapped. Completely powerless. You’re in agony with countless unbearable symptoms…”
Severe ME Week: How might healthcare be improved?
In this introduction you will find a discussion about the need for suitable healthcare. Also background about severe and very severe M.E. and the support that is available.
My Mummy and M.E. by Holly Peretti
Holly aged 9, has written about her mum, Chantalle, and explains what life is like being the daughter of a parent with M.E.
ME Association Monthly Poll: Your Confidence in the NHS During Covid-19 Lockdown
During the covid-19 lockdown, have you felt confident in the NHS’s ability to provide appropriate care and support as a person with ME/CFS?
ME Awareness: ‘Dialogues for a neglected illness’ a Wellcome Project by Natalie Boulton and Josh Biggs | 27 May 2020
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
ME Awareness: “ME is a cruel illness and whether we have it mild or severe, we all still suffer,” by Naomi Gilchrist | 15 May 2020
“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”
Very Severe ME: It’s Time for Something New! By Greg Crowhurst | 16 August 2019
I have cared day and night for my wife who has lain in unspeakable torment, torture and agony, for twenty-six years.
Severe ME Day: Life in a Nursing Home, Light Sensitivity and Very Severe M.E. by Eira Stuart | 08 August 2019
The nursing home was accommodating at first. However, they didn’t have any experience caring for M.E patients and I don’t think they fully realised the extent of the situation.
Severe ME Day: A Call to Act with Truth and Integrity by Greg Crowhurst | 08 August 2019
The impact of these last three decades of attempts to bury the serious disease M.E. under a sea of unrelated and vague “fatigue conditions” has been catastrophic for patients.
The Care Act and M.E. – Positive Decision by the Ombudsman and Case Study| 06 August 2019
This ombudsman decision shines a light on the difficulty that some people with M.E. face in obtaining social care.
Introducing Severe M.E. Week from the ME Association | 05 August 2019
It is Severe ME Day on Thursday, but we think people severely affected deserve to have a full week dedicated to raising awareness.
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