Tag: Bedbound

We hear from someone with severe ME who describes what Post-Exertional Malaise feels like and the measures that can help when in this situation…

Kara’s brilliant album, recorded from her sickbed, is performing exceptionally well in the charts. Download your copy today!

“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”

The album is out on Saturday, but the single is out now! Help Kara raise funds for the Post-Mortem Tissue Bank to advance vital research into M.E.

We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.

Severe M.E. Week will get off to a rousing start when Kara Jane Spencer releases an album and single she recorded from bed!

Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.

“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”

“It should have been the beginnings of my life instead it was the other way around. I was to lose all my 20’s and 30’s to this illness.”

“I guess my Christian faith sustains me even though a lot of the time I feel like I’m just holding on with my fingertips.”

“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”

“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”

“To be a disabled person does not mean that you must solely be a wheelchair user or someone with a physical deformity.”

We want to increase the flow of information to GPs and other healthcare professionals about M.E.

Emma spent a decade in isolation at home after becoming severely ill with ME in 2004. She has been interviewed by the BBC together with Dr Shepherd.

“It is incredible how strong she has been. I don’t think I would have coped with what Dee has experienced. She is my inspiration to keep on going and to support her on this journey.”

“I suspect that the losses faced by many people with M.E. are in some ways uniquely different to almost every other patient group.”

I have cared day and night for my wife who has lain in unspeakable torment, torture and agony, for twenty-six years.

Anonymity is a cover for the disappointment that is only overwhelmed by the relentless exhaustion of M.E.

Laura, now 25, has chosen to lay bare the brutal reality of life with M.E. – which affects 250,000 people in the UK.