Please invite your MP to the next APPG on ME meeting. We’re discussing diagnosis, management and the new NICE clinical guideline on ME/CFS.
Tag: Advocacy
The Times: Warning over conflicting medical advice to coronavirus recovery patients
“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.
Bedbound Midlands singer releases debut album – and is ahead of Taylor Swift in chart!
Kara’s brilliant album, recorded from her sickbed, is performing exceptionally well in the charts. Download your copy today!
Severe ME: Why is improvement subject to such harsh judgement and not celebrated?
“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”
How it feels to have Very Severe M.E. by Ruth Braham
“It is incessant, inescapable torture. You are trapped. Completely powerless. You’re in agony with countless unbearable symptoms…”
Jessica Taylor-Bearman wins The People’s Book Prize!
‘A Girl Behind Dark Glasses’ has beaten 13 other books on the short list to win an award voted by readers themselves…
ME Awareness: “What you need,” he said, “is a job harvesting cabbages,” by Ruth Rookledge | 25 May 2020
“For about the next year or so I thought I must just be imagining an illness, that it was my fault, it wasn’t real…”
ME Awareness: “These lost years have been a grieving process; a loss of a past life that seems so far away,” Naomi Gilchrist | 24 May 2020
“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”
The ME Association: We Support, Inform, Advocate and Invest in Biomedical Research | 19 May 2020
We provide support, reliable information, a voice when needed, and funding for medical research.
Stalwart champion of the ME community retires after distinguished parliamentary career | 01 May 2020
The Countess of Mar has decided to retire from the House of Lords, but will continue to work with Forward-ME.
MEA Fundraising: 20 Runners in The London Landmarks Half Marathon | 19 December 2019
The team is locked down and ready to rumble! Please support their efforts if you are able.
MEA Fundraising: ME Awareness Week 2020 – Go Blue 4 ME! | 17 December 2019
Be involved with the Go Blue 4 ME campaign next year. It’s time to start thinking about what you might do for ME Awareness in 2020!
We Respond to NICE ‘Suspected Neurological Disorders’ Quality Standard | 25 October 2019
Ewan Dale explains how the MEA has responded to this latest consultation from NICE and we review the controversial clinical guideline.
Make ME Visible Campaign – Mummying and ME | 16 October 2019
The term “invisible illness” suggests there is nothing to show for it. No clear symptom that Joe Bloggs on the street would see as such.
Invisible Illness Week 2019 – Masked, Trapped and Crumbling by Kate Stanforth | 15 October 2019
Kate teamed up with a professional make-up artist and photographer to create concepts visualising her medical conditions.
Make ME Visible Campaign – Invisible Illness Week 2019 | 14 October 2019
Is M.E. really an invisible illness? Which elements are visible and which parts remain hidden?
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