Tag: Advocacy

Please invite your MP to the next APPG on ME meeting. We’re discussing diagnosis, management and the new NICE clinical guideline on ME/CFS.

“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.

Kara’s brilliant album, recorded from her sickbed, is performing exceptionally well in the charts. Download your copy today!

“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”

“It is incessant, inescapable torture. You are trapped. Completely powerless. You’re in agony with countless unbearable symptoms…”

‘A Girl Behind Dark Glasses’ has beaten 13 other books on the short list to win an award voted by readers themselves…

“For about the next year or so I thought I must just be imagining an illness, that it was my fault, it wasn’t real…”

“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”

We provide support, reliable information, a voice when needed, and funding for medical research.

The Countess of Mar has decided to retire from the House of Lords, but will continue to work with Forward-ME.

The team is locked down and ready to rumble! Please support their efforts if you are able.

Be involved with the Go Blue 4 ME campaign next year. It’s time to start thinking about what you might do for ME Awareness in 2020!

Ewan Dale explains how the MEA has responded to this latest consultation from NICE and we review the controversial clinical guideline.

The term “invisible illness” suggests there is nothing to show for it. No clear symptom that Joe Bloggs on the street would see as such.

Kate teamed up with a professional make-up artist and photographer to create concepts visualising her medical conditions.

Is M.E. really an invisible illness? Which elements are visible and which parts remain hidden?