Dr Zinn’s ongoing research into the brain regions involved in the autonomic nervous system at DePaul University is an attempt to understand how brain dysregulation can result in the symptoms experienced by people with neurocognitive diseases. He is the author of numerous research papers in this field, and his latest research paper – co-authored with his late wife and Prof. Leonard Jason is the subject of the conversation below. 

Thank you everyone! Your exceptional generosity means that we now have the full quota of £12,500-worth of pledges added to our Christmas Challenge. Please do not attempt to add any …

Big Give Christmas Challenge – pledging phase is now complete! Read More »

Several studies indicate that people with ME/CFS are at a higher risk of suicide than the general population. In 2020 you co-authored a study on the risk factors of suicide amongst people with ME/CFS

Now the symptoms including chronic pain mean that I now spend my days travelling from the bed to the sofa and back and observing the world through a window. How I feel …

Severe ME Awareness Week: Forest’s story Read More »

My journey has been a difficult path of highs and lows, battles and victories, but with many battles lost.   I never wanted to be such a fighter, but life had other …

Severe ME Week 2021: My thoughts for the day… Read More »

I’ve been ill with ME for over fifteen years now – housebound and largely bedbound. One of the main things that has kept me going is my imagination.  The first …

Severe M.E Awareness Week: Sally Doherty Read More »

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of …

The ME Association ME/CFS (& Long Covid) Weekly Research Round-up Read More »

My name is Phil, and I’m 42. Four years ago, I would have described myself as quite an active person who was rarely ill. I liked the outdoors, camping and hiking – my wife and I would regularly walk 8-9-mile walks over …

Severe M.E Awareness Week: My Story Read More »

 I know this past year many people have faced loneliness and isolation due to the pandemic and some of the things that I hope come from this is better understanding …

Severe M.E Awareness Week: Severe M.E and me….. Read More »

A further report on the resignations appears in the Times and mentions the 4 members of the committee leaving (already covered in our previous blog), quotes the BMJ reporting a …

Experts quit over call to drop exercise as treatment for ME Read More »

The BMJ reports 3 members of the NICE guideline committee have left the group just before publication of the final set of guidelines for the treatment of ME/CFS. This is …

BMJ ARTICLE ABOUT NICE COMMITTEE RESIGNATIONS Read More »

Sooyoung Lee, a recent medical graduate, writes in the British Journal of General Practice about the attitudes to ME/CFS she saw whilst a medical student. Among the many positive aspects of …

CHRONIC FATIGUE SYNDROME PATIENTS — IT’S TIME TO RECONSIDER OUR ATTITUDES Read More »

Olivia (15) has kindly provided an account of her experiences after contracting Glandular Fever in 2018 and about having severe ME symptoms. We are extremely grateful to her for sharing …

Severe ME Awareness Week 2021: How I feel … I’m Tired  Read More »

MEA statement re the development of the new NICE guideline on ME/CFS Following publication of the draft of the new NICE guideline on ME/CFS for Stakeholder consultation in November 2020 …

Dr Charles Shepherd stands down from the NICE guideline committee with immediate effect Read More »

It is estimated that between 130,000 and 260,000 people in the UK have Myalgic Encephalopathy – the name we prefer – Myalgic Encephalomyelitis, or Chronic Fatigue Syndrome (ME/CFS) and around …

Severe ME Week – 2nd – 8th August 2021 Read More »

An afternoon tea, chat and a weekly quiz for the ME Association in a gorgeous coffee shop in Wakefield, West Yorkshire, has given Louise Gatfield a new lease on life.  …

A weekly quiz at the coffee shop means so much to Louise Read More »

Sarah Elsby has finished the series of six walking challenges she promised to do to raise money for the ME Association. The first of them – a coastal walk in …

Sarah’s triumph – she finally completes her six walking challenges! Read More »

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of …

The ME Association ME/CFS (& Long Covid) Weekly Research Round-up Read More »

As a charity that funds biomedical research into myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), we are not aware of any researchers who hold negative views about the patient community (BMJ: Newman M. Chronic …

British Medical Journal: Working together to find the cause & effective treatments for ME/CFS by Dr Charles Shepherd Read More »

“Eleanor was 15 when she was diagnosed with M.E. following a stomach infection. She has always been a high achiever, with academics being a big part of her life. Her …

A labour of love – but it did demand early starts before work! Read More »