The ME support group on the Isle of Man has reacted tetchily to the news that there has been a further delay in setting up a joint ME/CFS and Long …

Why are we waiting? Isle of Man ME/CFS campaigners cry out for new Post Viral Fatigue Service Read More »

The Dialogues for a neglected illness (Dialogues for ME/CFS) website has another excellent video charting the recent history of the illness and how it has been poorly treated. The video is …

New video from “Dialogues for a neglected illness” charting the “Tangled Story of ME/CFS” Read More »

The patient.info website has an article about the need to study the similarities between Long COVID and ME/CFS as the conditions have many overlaps. Extracts A large number of people …

Why is ME/CFS research key to understanding long COVID? Read More »

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of …

Research Roundup: ME/CFS Research Published 27 November – 3 December 2021 Read More »

We have a new poll to find out how the booster vaccine affected the ME/CFS community. Details are below, together with the poll for you to complete. To clarify the …

December Poll: how did the Covid-19 booster affect you? Read More »

Results from a US clinical trial on the efficacy and safety of melatonin for sleep disturbance in multiple sclerosis Dr Charles Shepherd Comments Multiple sclerosis (MS) has a number of …

OTC Melatonin Improves Sleep Quality in MS Patients, Trial Finds Read More »

Deadline Monday 13th December 5pm  Over 1,700 people have now voted for their top ten ME/CFS research priorities. With the deadline fast approaching this is your last chance to join them and …

Last chance to vote for your top ten ME/CFS research priorities  Read More »

We were delighted to smash through the target for our Christmas Appeal 20 hours ahead of time yesterday – with the magnificent support of over 200 generous donors. You raised …

Super result for our Big Give Christmas Challenge Read More »

The CambridgeshireLive website discusses whether the new NICE Guideline will change how the DWP will handle benefit claims. Extracts The DWP has said PIP, Universal Credit, and ESA assessments will …

DWP release details about PIP, Universal Credit, ESA assessments for ME patients Read More »

PoTS and long Covid including information for people with ME/CFS Dr Charles Shepherd, Honorary Medical for the ME Association comments on the following paper; Autonomic dysfunction post-acute COVID-19 infection (Desai …

PoTS and Long Covid Read More »

Omicron (B.1.1.529), Covid-19 boosters and ME/CFS On November 25th scientists in South Africa, where cases of Covid-19 have been rising very rapidly, announced that they had found a worrying new …

Update on Omicron, Covid-19 boosters and ME/CFS Read More »

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of …

Research Roundup: ME/CFS Research Published 20-26 November 2021 Read More »

Extracts “Until now, experts haven’t been able to confidently say whether ME/CFS is a part of long COVID. But a new study, by researchers at Icahn School of Medicine at …

BBC Science: Nearly half of all Long Covid patients may have ME/CFS Read More »

We have just received some disappointing information from the ME/CFS specialist service at Queens Hospital, Romford, Essex:  “The specialist myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) service from Neurology is closing and appointments to newly …

Closure of the ME/CFS specialist service at Queens Hospital Romford, Essex Read More »

Thank you to everyone who took part and helped raise £1,268 for our Ramsay Research Fund. The winners were Jo Ives and Gaynor Reynolds, who will each receive an M&S …

Our M&S Christmas hamper raffle is back on this Sunday (28th November) Read More »

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of …

Research Roundup: ME/CFS Research Published 13-19 November 2021 Read More »

Dr Charles Shepherd comments: “The RCPCH’s more positive response to the recently published NICE Guidelines is to be welcomed. It is noteworthy that the college is no longer aligning itself …

Royal College of Paediatrics & Child Health: The NICE Clinical Guideline and Child Safeguarding Concerns Read More »

BACME (The British Association of CFS/ME) is a professional organisation whose members comprise healthcare professionals working in NHS secondary care i.e., the ME/CFS specialist services that are mostly based in …

What do HCPs in ME/CFS Specialist Services think about the use of CBT and GET, and the new NICE Clinical Guideline? Read More »

Radio Manx has published an article on their site with updates on the proposed ME/CFS service. There are audio clips of interviews with a treasury minister and a local support …

‘Good steps’ made towards interim Isle of Man M.E. service Read More »

Over 1,000 people have now voted for their ME/CFS research priorities. People with ME/CFS, carers and clinicians are all asked to take part. Vote for your research priorities at www.psp-me.co.uk …

Join over 1,000 people and vote for your ME/CFS research priorities! Read More »