Maeve Boothby-O’Neill Inquest: Severe ME patient writes to coroner
Maeve Boothby-O’Neill Inquest: Severe ME patient writes to coroner Read More »
As Maeve Boothby O’Neill’s inquest approaches its conclusion with the […]
Maeve Boothby-O’Neill Inquest: Letters and statements
Maeve Boothby-O’Neill Inquest: Letters and statements Read More »
**Trigger Warning: Very Upsetting Content** David Tuller shares letters and
Labour government commits to publishing the final delivery plan on ME/CFS
Labour government commits to publishing the final delivery plan on ME/CFS Read More »
Parliamentary Question: Baroness Scott of Needham Market, Liberal Democrat, 29
The Guardian: GP who treated woman with severe ME tells inquest more funding is needed
The Guardian: GP who treated woman with severe ME tells inquest more funding is needed Read More »
Dr Lucy Shenton says specialist care is required for patients
People with myalgic encephalomyelitis and their carers are calling for a reversal of decades of underfunding
Observer Letters 04 August 2024 “Alastair Miller claims there have
BBC News: Daughter’s death ‘wholly preventable’, says mother
BBC News: Daughter’s death ‘wholly preventable’, says mother Read More »
**Trigger Warning: Upsetting content** A mother whose daughter had myalgic
Maeve Boothby-O’Neill Inquest: Mum fears daughter’s ME death could ‘too easily’ happen to someone else
**Trigger Warning: Upsetting content** The mother of a Devon woman
Maeve Boothby O’Neill inquest: Doctor had ‘never seen’ ME patient with such severe symptoms
He believed that there were now better arrangements in place for patients with ME within the organisation.
Research: Six year follow-up data on Cyclophosphamide study
Research: Six year follow-up data on Cyclophosphamide study Read More »
Six-year follow-up data reveal that ME/CFS patients treated with cyclophosphamide
Research Review: Long COVID Is Not a Functional Neurologic Disorder
Research Review: Long COVID Is Not a Functional Neurologic Disorder Read More »
We conclude that considering long COVID as FND is inappropriate…
Scotland: There is no help – final message of woman with ME
Scotland: There is no help – final message of woman with ME Read More »
Before Edina died, her family approached BBC Scotland News to share her experience…
Devon Live: Exeter doctor asked ME sufferer to remain in hospital before she died, inquest hears
**Trigger Warning: Upsetting Content** Maeve Boothby-O’Neill, 27, had suffered with
Parliamentary Question: What steps does the Government plan to take to improve support for people with ME
QUESTION: Dr Rupa Huq, Labour, Eailing Central and Acton: To
Daily Mail: Doctors treating a young woman who died, deny hospital medics did not regard ME/CFS as a physical illness, inquest hears
Doctors treating a young woman who died after suffering from
BBC News: Doctors held ‘outdated’ ME views, inquest hears
BBC News: Doctors held ‘outdated’ ME views, inquest hears Read More »
A hospital treating a woman with myalgic encephalomyelitis (ME) was
ITV News: Woman in Sussex hospital for six months calls for ME treatment at home
ITV News: Woman in Sussex hospital for six months calls for ME treatment at home Read More »
**Trigger Warning: Upsetting content** A woman from Sussex suffering from
The Guardian: NHS wards not capable of treating ME patients, expert tells Exeter inquest
The Guardian: NHS wards not capable of treating ME patients, expert tells Exeter inquest Read More »
A leading ME expert has told an inquest there is
Building an NHS that’s there for people with Long Covid and ME
Building an NHS that’s there for people with Long Covid and ME Read More »
#ThereForME is a patient- and carer-led campaign calling for an
The Guardian: Devon woman with ME asked GP to help her ‘get enough food to live’, inquest hears
**Trigger Warning: Upsetting Content** Maeve Boothby O’Neill, 27, was admitted
BBC Radio 4: Sean O’Neill talks about his daughter Maeve who had ME, ahead of the inquest into her death
**Trigger Warning: Upsetting Content** Listen to Sean O’Neill (senior writer