ME Association: Professor Manoj Sivan to develop new protocol for dysautonomia in ME/CFS and Long Covid
We hope the protocol when implemented will bring relief to the hundreds of thousands of people who suffer from these very debilitating symptoms
America: What’s Wrong With the National Academies’ Long Covid Definition?
America: What’s Wrong With the National Academies’ Long Covid Definition? Read More »
The specificity is rather poor, which translates into inaccurately diagnosing many who do not have Long Covid.
New York Times: New report underscores the seriousness of Long Covid
New York Times: New report underscores the seriousness of Long Covid Read More »
An important report from the National Acadamies in America with comparisons to ME/CFS and FM.
The Guardian: ‘I could bench-press 100kg. Now, I can’t walk’: Lucy’s life with long Covid
A great article from The Guardian with opinion from Dr Binita Kane on ME/CFS and Long Covid.
Carers UK: Open letter from unpaid carers to the future Prime Minister
Carers UK: Open letter from unpaid carers to the future Prime Minister Read More »
The ME Association is an official sponsor of Carers Week
A new support pack for anyone with ME/CFS going to hospital
A new support pack for anyone with ME/CFS going to hospital Read More »
The pack aims to address the many issues facing people with ME/CFS when they attend hospital.
The Department of Health and Social Care launch ‘Toolkit’ aimed at stimulating research into ME/CFS
Endorsed by UK CRC, DHSC, UKRI MRC, NIHR, and CSO in Scotland.
Editorial: Medical students highlight importance of ME/CFS medical education
Editorial: Medical students highlight importance of ME/CFS medical education Read More »
Medical students at Scottish medical schools were invited to take part in an essay competition on ME/CFS.
NHS England Launches New E-learning Module on ME/CFS!
NHS England Launches New E-learning Module on ME/CFS! Read More »
The new e-learning module was launched at the BACME conference…
The ME Association: ME/CFS and Long Covid at the Disability employment inquiry
The ME Association: ME/CFS and Long Covid at the Disability employment inquiry Read More »
The committee was focused on ‘barriers to work’ which is not an easy subject to talk about…
Medical student’s win essay competition on ME/CFS in Scotland
Medical student’s win essay competition on ME/CFS in Scotland Read More »
Essays on ME/CFS by medical students at universities in Edinburgh,
Parents of children with Long Covid accused of making it up
Parents of children with Long Covid accused of making it up Read More »
“There is a cultural problem that is ingrained within medicine to not believe patients if we can’t explain their symptoms…”
Long COVID, ME/CFS and the Importance of Studying Infection-Associated Illnesses
Long COVID, ME/CFS and the Importance of Studying Infection-Associated Illnesses Read More »
Researchers highlight an overlap of symptoms in Long Covid and ME/CFS studies but further research is urgently needed especially those patients with severe/very severe ME.
ME Association Statement: Improving healthcare for people with ME/CFS and Long Covid
ME Association Statement: Improving healthcare for people with ME/CFS and Long Covid Read More »
The ME Association is committed to working with the NHS and social care providers to improve healthcare for people with ME/CFS and Long Covid.
Research: Sex and disease severity‑based analysis of steroid hormones in ME/CFS
Research: Sex and disease severity‑based analysis of steroid hormones in ME/CFS Read More »
Study found that levels of steroid hormones in were significantly different in ME/CFS…
Prevalence: How many people have ME/CFS in the UK?
Prevalence: How many people have ME/CFS in the UK? Read More »
The honest answer is that we just don’t know how many people have ME/CFS in the UK.
The Times: “People with ME have been ignored for far too long”
The Times: “People with ME have been ignored for far too long” Read More »
“This Sunday, World ME Day, is an opportunity to refocus minds on how much more needs to be done.”
Research: Long Covid clinical trials to study sleep disturbances, exercise intolerance, and post exertional malaise
“We urgently need to come up with answers to help those struggling with Long Covid feel whole again.”
Parliamentary question: Hospital compliance with NICE Guideline on ME/CFS
Parliamentary question: Hospital compliance with NICE Guideline on ME/CFS Read More »
Baroness Scott tabled a question about hospital compliance with the NICE Guideline on ME/CFS.
An incomplete picture: understanding the burden of Long Covid
An incomplete picture: understanding the burden of Long Covid Read More »
An international report examining the impact of Long Covid with recommendations to improve health outcomes.