Watch the Decode ME Results Webinar online
Watch the Decode ME Results Webinar online Read More »
The initial results for Decode ME, the largest genetic study […]
Welfare reform round-up: new independent disability panel, applications opening soon
Welfare reform round-up: new independent disability panel, applications opening soon Read More »
Alongside the promised Personal Independence Payment (PIP) review, the Government
SEND reforms: protect legal rights and embed the 2021 NICE Guideline for children with ME/CFS or Long Covid
Parents and campaigners are raising urgent concerns about the government’s
Dr Charles Shepherd interviewed about the state of ME/CFS in the UK on Paradigms podcast
Dr Charles Shepherd interviewed about the state of ME/CFS in the UK on Paradigms podcast Read More »
Dr Ken Friedman (Associate Professor of Pharmacology and Physiology, New
BACME: ME/CFS Tube Feeding Survey
BACME: ME/CFS Tube Feeding Survey Read More »
British Association of Clinicians in ME/CFS (BACME) are conducting a
Annals of Medicine: Mitochondrial function is impaired in long COVID patients
Annals of Medicine: Mitochondrial function is impaired in long COVID patients Read More »
On the 12th August, 2025, the following paper, ‘Mitochondrial function
ME Essential: Winter 2022: Men don’t talk about things – or do they?
ME Essential: Winter 2022: Men don’t talk about things – or do they? Read More »
Along with ME/CFS, David, who also suffers with Postural Tachycardia
ME Essential: Summer 2023: There is always hope!
ME Essential: Summer 2023: There is always hope! Read More »
By Rachel White Before I developed Myalgic Encephalomyelitis, I was
The Times: Medical Misogyny and ME/CFS Research: MEA writes to the Times Editor in response to published letters
The Times published the following letters (9th August 2025) in
Saga of Royal Free Disease by Dr Melvin Ramsay is now an e-book!
Saga of Royal Free Disease by Dr Melvin Ramsay is now an e-book! Read More »
Dr Melvin Ramsay’s book, ‘Myalgic Encephalomyelitis and PostViral Fatigue States:
Sunday Times: Sarah Boothby: As my daughter died of ME, the state met in secret to blame me
**Trigger Warning: Upsetting Content – also discusses the wrongly assumed
David Tuller interviews Prof Chris Ponting about Decode ME Results
David Tuller interviews Prof Chris Ponting about Decode ME Results Read More »
David Tuller, DrPh, has recorded an interview with Prof Chris
BACME Statement on DecodeME study results
BACME Statement on DecodeME study results Read More »
BACME has sent the ME Association the following statement to
Kara Jane’s new album is out today
Kara Jane’s new album is out today Read More »
‘In Limbo’ is the name of the new album released
Channel 4 News Video: ME linked to your genetics – early study indicates
Channel 4 News Video: ME linked to your genetics – early study indicates Read More »
Channel 4 News have broadcast a report on Decode ME’s
The Guardian: Scientists find link between genes and ME/CFS
The Guardian: Scientists find link between genes and ME/CFS Read More »
“These provide the first robust evidence for genetic contributions to
Decode ME release initial DNA results!
Decode ME release initial DNA results! Read More »
The DecodeME team announce results from the analysis of 15,579
Scotland: Two Leading Long Covid Charities Resign from Strategic Long Covid Network
Scotland: Two Leading Long Covid Charities Resign from Strategic Long Covid Network Read More »
Today (05.08.25), Long Covid Scotland and Long Covid Kids have
Welfare Reform: When Promises Clash with Practice: What Stephen Timms Didn’t Say About Co-Production
By Ella Smith, ME Association Welfare Rights Consultant In a
Severe ME Week 2025: 500 Days in Bed
Severe ME Week 2025: 500 Days in Bed Read More »
This year, for Severe ME Awareness Week 2025 (4th-10th August)