MEDICAL MATTERS

  • Medical Matters features questions asked by Members of the ME Association on health-related topics.
  • Dr Charles Shepherd and the ME Association's other advisers answer these questions by sharing their expert knowledge.
  • Medical Matters is based on the popular ‘Ask the Doctor’ series in ME Essential magazine.
  • It is a free resource that supplements the detailed information contained in the full range of literature that can be found in the website shop.

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Questions in the Category: Myalgic Encephalopathy

Appointments: Hospital

ME Essential Spring 2024

I asked my GP to refer me to the ME/CFS Clinic at our local hospital two months ago. She was asked to fill in a form that provided a lot of information about my symptoms and how they affect me. I also had to have a lot of blood tests – the results of which all came back as normal.

Since then I haven’t heard anything further about arranging an appointment. Neither has my GP.

What can I do?

Treatments: Alzheimer's medication

ME Essential Spring 2024

A vast amount of money is being spent on research into Alzheimer’s disease and dementia. This has resulted in significant progress being made in finding both the cause and effective forms of treatment for dementia.

Now that there are drugs available that can help to slow down the progress of memory decline in Alzheimer’s disease could some of these drugs also be helpful for treating cognitive dysfunction in both ME and Long Covid?

Classification : ME/CFS

ME Essential Autumn 2023

I know that ME and CFS are both classified by the World Health Organisation as a neurological disease. But I’ve also seen statements on the internet to say that ME is now being classified as an autoimmune disease. Is this correct?

Medication: What is the best method of contraception if you have ME?

ME Essential Autumn 2023

What is the best method of contraception if you have ME?

My partner and I have a dilemma regarding our choice of contraception. I have mild to moderate ME/CFS. My husband is fit and well. We want to use a safe and reliable method but we aren't having much luck!

I had to give up using ‘the pill' because of side-effects, including migraine-type headaches. So we are reluctantly using barrier protection. But this isn't ideal when you are not wanting to have another baby for both health and practical reasons.

I've thought about using a coil but am worried about whether having a ‘foreign body' inside could cause more problems with my immune system. I'm also worried about the risk of infection, having had a pelvic infection in the past.

There doesn't seem to be a simple solution and my GP isn’t very helpful when it comes to discussing the remaining options.

Vaccinations: Flu (Influenza) 2023-24

ME Essential Autumn 2023

Can you help me reach an informed decision about the 2023-24 Flu vaccination?

Vaccinations: Autumn Covid Booster 2023

ME Essential Autumn 2023

Can you help me reach an informed decision about the 2023 Autumn Covid Booster vaccination?

Symptoms: Post-Exertional Malaise (PEM)

ME Essential Summer 2023

What is Post-Exertional Malaise and how can it best be managed? 

Treatment: Hyperbaric Oxygen Therapy (HBOT)

ME Essential Summer 2023

Has there ever been a clinical trial to assess the use to hyperbaric oxygen (HBO) in ME?  I know that HBO is being used by people with multiple sclerosis as well as ME – so it seems that there are positive effects in the case of neurological diseases. I’ve also read that a clinical trial involving people with Long Covid has found some beneficial effects.

Folic Acid Deficiency

ME Essential Summer 2023

A recent blood test has shown that my folic acid levels are low. My GP thinks this may be due to my rather restrictive diet. But could folic acid deficiency be caused by ME/CFS?

Gilbert's Syndrome

ME Essential Summer 2023

A few months ago I noticed that the whites of my eyes had turned slightly yellow. It turned out that I had a mild episode of jaundice. My GP was a bit mystified – so I was sent to see a liver specialist who diagnosed a condition called Gilbert’s Syndrome. The specialist said it was nothing to worry about. However, as he had seen other people with ME/CFS with the same condition, he wondered whether there may be a link. Is this so?

Charles Shepherd

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