Caring is vitally important but it can be quite isolating and, if you are new to caring, it can be hard knowing what to do. We understand the difficulties of being a carer and are here to help.
In order to better capture the current experiences of unpaid carers of people with severe and very severe ME/CFS, the 25% ME Group and the ME Association looked at focus groups in 2024 covering healthcare, social care and caring in general.
As we find when working with people with severe ME/CFS, the carers were keen to share their experiences to aid and inform others. The information they provided and experiences they kindly shared have been invaluable in the production of this booklet.
You can also download a text only version of the booklet for printing here: