The British Association of Clinicians in ME/CFS (BACME) along with Sue Luscombe, the professional adviser on diet and nutrition at the MEA, was involved in the preparation of this report on ME/CFS Tube Feeding Survey which they conducted August-October 2025.
The survey responses and the report’s recommendations reflect some of the high-profile concerns that have been raised by people with ME/CFS and their families when the NHS fails to recognise the need for tube-feeding and the administration and monitoring of potentially life-saving nutritional support.
While malnutrition, and the risk of malnutrition may only affect a small number of people with ME/CFS, it is yet another neglected area of healthcare and of research.