February 2018

Feedback Request: PIP Medical Assessments – Ahead of meeting tomorrow with the CMO from Capita at the House of Lords | 27 February 2018

We want to hear from anyone who has a recent example of a medical assessor expressing inaccurate or even sceptical/hostile opinions about ME/CFS.

Feedback Request: PIP Medical Assessments – Ahead of meeting tomorrow with the CMO from Capita at the House of Lords | 27 February 2018 Read More »

We want to hear from anyone who has a recent example of a medical assessor expressing inaccurate or even sceptical/hostile opinions about ME/CFS.

Fundraising Feature: From bed to Ben Nevis – Emma’s 20-year recovery from severe M.E. | 22 February 2018

Emma Jenkins has had M.E. for around 20 years. She tells us that her journey of recovery is far from over, but she’s much better than she was. Hers is another inspiring tale of patience, courage, and a determination not to be beaten.

Fundraising Feature: From bed to Ben Nevis – Emma’s 20-year recovery from severe M.E. | 22 February 2018 Read More »

Emma Jenkins has had M.E. for around 20 years. She tells us that her journey of recovery is far from over, but she’s much better than she was. Hers is another inspiring tale of patience, courage, and a determination not to be beaten.

Former businesswoman hosts Valentine dance for people who might otherwise be alone | 21 February 2018

Supporters who twirled the evening away during a Valentine dance at the Heacham public hall on Saturday night fulfilled a dream for the event’s organiser.

Former businesswoman hosts Valentine dance for people who might otherwise be alone | 21 February 2018 Read More »

Supporters who twirled the evening away during a Valentine dance at the Heacham public hall on Saturday night fulfilled a dream for the event’s organiser.

Government-funded ME/CFS trial ‘one of greatest medical scandals of 21st century’ | 20 February 2018

A controversial medical trial part-funded by the Department of Work of Pensions will emerge as “one of the greatest medical scandals of the 21st century” an MP today claimed.

Government-funded ME/CFS trial ‘one of greatest medical scandals of 21st century’ | 20 February 2018 Read More »

A controversial medical trial part-funded by the Department of Work of Pensions will emerge as “one of the greatest medical scandals of the 21st century” an MP today claimed.

Fundraising Feature: Can we help Lauren make an exhibition for M.E.? | 20 February 2018

A HUGE thank you to everyone who has kindly supported Lauren Childs’s call for knitted squares for her All about ME Knitathon project. Her aim now is to exhibit the blankets she has been making…

Fundraising Feature: Can we help Lauren make an exhibition for M.E.? | 20 February 2018 Read More »

A HUGE thank you to everyone who has kindly supported Lauren Childs’s call for knitted squares for her All about ME Knitathon project. Her aim now is to exhibit the blankets she has been making…

ME Association Index of Published ME/CFS Research | 19 February 2018

This is an A-Z index of the most important research studies (and selected key documents and articles), listed by subject matter, that have been published on ME/CFS.

ME Association Index of Published ME/CFS Research | 19 February 2018 Read More »

This is an A-Z index of the most important research studies (and selected key documents and articles), listed by subject matter, that have been published on ME/CFS.

Pernicious Anaemia: symptoms, diagnosis, Vitamin B12, ME/CFS and the NICE guideline review | 16 February 2018

There is an overlap in symptom presentation between Pernicious Anaemia and M.E. and the lack of routine testing in the current NICE guideline for ME/CFS has now been challenged.

Pernicious Anaemia: symptoms, diagnosis, Vitamin B12, ME/CFS and the NICE guideline review | 16 February 2018 Read More »

There is an overlap in symptom presentation between Pernicious Anaemia and M.E. and the lack of routine testing in the current NICE guideline for ME/CFS has now been challenged.

Stanford Scope: Exercise elevates blood signature difference between people with, without ME/CFS | 16 February 2018

A new study suggests that a blood test following exercise may be a very good way to differentiate between people who have ME/CFS and people who don’t.

Stanford Scope: Exercise elevates blood signature difference between people with, without ME/CFS | 16 February 2018 Read More »

A new study suggests that a blood test following exercise may be a very good way to differentiate between people who have ME/CFS and people who don’t.

NICE announces next steps in updating its guideline on ME/CFS | 16 February 2018

NICE has also confirmed the next steps in the development of the new guideline, starting with a further workshop with stakeholder organisations on 25 May to discuss the scope of the guideline.

NICE announces next steps in updating its guideline on ME/CFS | 16 February 2018 Read More »

NICE has also confirmed the next steps in the development of the new guideline, starting with a further workshop with stakeholder organisations on 25 May to discuss the scope of the guideline.

MEA Summary Review: Elevated BNP levels in ME/CFS associate with cardiac dysfunction | 14 February 2018

A recent study from a research group at Newcastle University has found that patients with ME/CFS have significantly higher levels of a hormone called BNP in their blood and that this also correlated with significantly lower cardiac volumes.

MEA Summary Review: Elevated BNP levels in ME/CFS associate with cardiac dysfunction | 14 February 2018 Read More »

A recent study from a research group at Newcastle University has found that patients with ME/CFS have significantly higher levels of a hormone called BNP in their blood and that this also correlated with significantly lower cardiac volumes.

People living with M.E and Carers Wanted for Contributions to a Postgraduate Health Psychology Programme at GCU | 14 February 2018

Glasgow Caledonian University’s Postgraduate Health Psychology programme, is looking for a few local volunteer patients and carers to help develop the practical understanding of trainee psychologists.

People living with M.E and Carers Wanted for Contributions to a Postgraduate Health Psychology Programme at GCU | 14 February 2018 Read More »

Glasgow Caledonian University’s Postgraduate Health Psychology programme, is looking for a few local volunteer patients and carers to help develop the practical understanding of trainee psychologists.

Westminster Hall Debate: The PACE trial and its effect on people with M.E. – A meeting with Carol Monaghan MP | 08 February 2018

Dr Charles Shepherd and Dr William Weir, met with Carol Monaghan MP yesterday, to discuss and advise on the Westminster Hall debate on the PACE trial that is taking place on 20th February.

Westminster Hall Debate: The PACE trial and its effect on people with M.E. – A meeting with Carol Monaghan MP | 08 February 2018 Read More »

Dr Charles Shepherd and Dr William Weir, met with Carol Monaghan MP yesterday, to discuss and advise on the Westminster Hall debate on the PACE trial that is taking place on 20th February.

Forward ME – Discussion of NICE guideline review, Royal College of GPs conference, and Westminster Hall debate on ME/CFS | 06 February 2018

Minutes of meeting held in January, where charity members discussed plans for NICE workshop, RCGP conference, and Westminster Hall debate on ME/CFS.

Forward ME – Discussion of NICE guideline review, Royal College of GPs conference, and Westminster Hall debate on ME/CFS | 06 February 2018 Read More »

Minutes of meeting held in January, where charity members discussed plans for NICE workshop, RCGP conference, and Westminster Hall debate on ME/CFS.

Tips for hosting a screening of Unrest in your local community | 06 February 2018

If you are thinking about hosting Unrest in your local community, we hope that our tips and experiences will help you in planning and preparing for your own event.

Tips for hosting a screening of Unrest in your local community | 06 February 2018 Read More »

If you are thinking about hosting Unrest in your local community, we hope that our tips and experiences will help you in planning and preparing for your own event.

Fundraising Feature: “This is me. This is M.E.” by Lee Stammers | 05 February 2018

My name is Lee Stammers, a-soon-to-be 40-year-old with M.E. I’m going BLUE for the whole of February (FeBLUEary) to raise awareness about the reality and seriousness of this cruel illness.

Fundraising Feature: “This is me. This is M.E.” by Lee Stammers | 05 February 2018 Read More »

My name is Lee Stammers, a-soon-to-be 40-year-old with M.E. I’m going BLUE for the whole of February (FeBLUEary) to raise awareness about the reality and seriousness of this cruel illness.

The ME Association ‘Real M.E.’ photo campaign | 05 February 2018

We want to include images of real people with M.E. on our website, in our blogs, and across our social media, and so we are asking you to send us quality digital photographs in whatever situations or activities you consider most representative of your life with M.E.

The ME Association ‘Real M.E.’ photo campaign | 05 February 2018 Read More »

We want to include images of real people with M.E. on our website, in our blogs, and across our social media, and so we are asking you to send us quality digital photographs in whatever situations or activities you consider most representative of your life with M.E.

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