ME/CFS NICE Guideline

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The NICE Guideline provides recommendations on:

  • Illness severities
  • Principles of care
  • Suspecting ME/CFS
  • Diagnosis
  • ME/CFS specialist services
  • Information and support
  • Safeguarding
  • Access to care and support
  • Work, education and training
  • Multidisciplinary care
  • Managing ME/CFS
  • Symptom management
  • Managing coexisting conditions
  • Managing flare-ups and relapses
  • Training for health and social care professionals
  • Ongoing care and support
  • Care for people with severe and very severe ME/CFS

NICE WEBSITE

More information and resources are available from the NICE website where you can also download the Guideline as a PDF:

  • Information for the public

  • ME/CFS: The care you should expect

  • Making decisions together

  • Where can I find out more?

  • Overview

  • Guidance

  • Professional Responsibility

  • Illness Severities

  • Box 1: Severity of ME/CFS

  • 1. Principles of care

  • Principles of care for people with ME/CFS

  • Awareness of ME/CFS and its impact

  • Approach to delivering care

  • 2. Suspecting ME/CFS

  • Suspecting ME/CFS

  • Referring children and young people with suspected ME/CFS

  • 3. Advice for people with ME/CFS

  • Advice for people with suspected ME/CFS

  • 4. Diagnosis

  • Diagnosis

  • 5. Assessment and care and support planning by an ME/CFS specialist team

  • ME/CFS specialist team

  • Assessment and care and support planning by an ME/CFS specialist team

  • 6. Information and support

  • Communication

  • Information about ME/CFS

  • Social care

  • Supporting families and carers of people with ME/CFS

  • 7. Safeguarding

  • Safeguarding

  • 8. Access to care and support

  • Access to care and support

  • Hospital care

  • Maintaining independence

  • Aids and adaptations

  • 9. Supporting people with ME/CFS in work, education, and training

  • Supporting people with ME/CFS in work, education and training

  • 10. Multidisciplinary care

  • Multidisciplinary care

  • 11. Managing ME/CFS

  • Managing ME/CFS

  • Energy management

  • Incorporating physical activity and exercise

  • Graded Exercise Therapy

  • Flare-ups and relapse

  • 12. Symptom management for people with ME/CFS

  • Symptom management for people with ME/CFS

  • Rest and sleep

  • Physical functioning and mobility

  • Orthostatic intolerance

  • Pain

  • Medicines

  • Medicines for symptom management

  • Dietary management and strategies

  • Lightning Process

  • Cognitive Behavioural Therapy

  • 13. Managing co-existing conditions

  • Managing coexisting conditions

  • 14. Managing flare-ups and relapse

  • Managing flare-ups in symptoms and relapse

  • After a flare-up or relapse

  • 15. Review in primary care

  • Review in primary care

  • Additional principles for children and young people

  • 16. Training for health and social care professionals

  • Training for health and social care professionals

  • 17. Care for people with severe or very severe ME/CFS

  • Care for people with severe or very severe ME/CFS

  • Awareness of severe and very severe ME/CFS and its impact

  • Assessment and care and support planning by an ME/CFS specialist team

  • Access to care and support

  • Hospital care

  • Managing ME/CFS

  • Energy management

  • Symptom management

  • Dietary management and strategies

  • Cognitive behavioural therapy

  • Terms used in this guideline

  • Activity

  • Advocate

  • Care and support plan

  • Carers

  • Children and young people

  • Energy management

  • Exercise

  • Fatigue

  • Flare-up

  • Graded Exercise Therapy

  • ME/CFS specialist team

  • Orthostatic intolerance

  • Physical activity

  • Physical functioning and mobility

  • Post-exertional malaise

  • Relapse

  • Special interest in ME/CFS

  • Therapy blueprint

  • Unrefreshing sleep

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