The Health and Social Care Team would like to thank everyone who has already expressed an interest in joining our working group. The group is open to patients and carers residing in or with experience of ME/CFS and Long Covid services in the BOB ICB (Buckinghamshire, Oxfordshire, and Berkshire West Integrated Care Boards) area.
We encourage as many people as possible to get involved. We are particularly interested in the experience of severe and very severe patients, who represent an especially neglected patient group. It is our hope that the contributions from the working group will help service leads and commissioners better understand the patient experience and drive meaningful change to ensure local NHS and social care services meet the needs of patients and their carers.
If you would like to join the working group, please take a moment to complete the short survey below.