The ME Association invites you to complete a website survey about PoTS to discover what symptoms you may have, what management strategies you use or if you take medication.  Please take part below:  

Do you have symptoms of PoTS? *

• Yes
• No

How many years have you had PoTS symptoms?

• 0-4
• 5-8
• 9-12
• 12+

Have you been diagnosed with Postural Orthostatic Tachycardia Syndrome (PoTS)

• Yes
• No
• Awaiting Diagnosis

How many years did it take to get a diagnosis of PoTS?

• 0-1
• 2-4
• 5-8
• 9-12
• 13-20
• 20+

What PoTS symptoms do you experience?

• Palpitations/Tachycardia (rapid pulse rate)
• Dizziness or light-headedness or presyncope (almost fainting)
• Syncope (fainting or blackouts)
• Chest discomfort
• Shortness of breath
• Excessive sweating

Do you experience any of these other symptoms of PoTS – some of which also occur in ME/CFS?

• Headache
• Nausea
• Debilitating Fatigue
• Dry mouth
• Skin Discolouration (blue/dark red feet)
• Cognitive Dysfunction (brain fog)
• Pins and Needles in arms and/or legs
• Swollen extremities
• Bladder Problems
• Bowel Problems
• Abdominal Discomfort
• Blurred vision
• Sleep disturbance

Do you find PoTS symptoms are worse in the summer due to heat intolerance?

• Yes
• No

Do you have any of the following co-morbitidities?

• ME/CFS
• Long Covid
• Fibromyalgia
• hEDS (Hypermobility Ehlers-Danlos Syndrome)
• Migraine
• Irritable Bowel Syndrome
• Crohn’s Disease
• MCAS (Mast Cell Activation Syndrome)
• Addison's disease
• Crohn's disease or ulcerative colitis
• Diabetes
• Lupus
• Sjogren's syndrome
• Other

Other co-morbidities not listed above

What lifestyle changes have you found helped the main symptoms of PoTS?

• Increasing Salt Intake
• Increasing Fluids
• Wearing Compression Stockings
• Maintaining a healthy diet and smaller more frequent meals
• Elevating head at night
• Reducing caffeine intake
• Other

Other helpful lifestyle changes not listed above

Do you take medication for PoTS?

• Yes
• No

Do you take any of the following medications?

• Beta blocker (e.g., Metoprolol, Propranolol)
• Desmopressin
• Fludrocortisone
• Ivabradine (Procoralan)
• Midodrine
• Pyridostigmine (Mestinon)
• SSRI drug (e.g., citalopram, sertraline/Lustral)
• Other

Other medications not listed above

Complete Survey