The ME Association End of Week Research Round-up
The ME Association End of Week Research Round-up Read More »
This week, three new research studies about ME/CFS have been published and we highlight two of them.
August 2020
Rich puts our name up in lights at the Ludlow Fringe Festival and gives us a book to remember
Fancy some northern humour? Take a look at Rich Davenport’s comic genius. Proceeds from his latest book kindly donated to the ME Association.
The ME Association End of Week Research Round-up
The ME Association End of Week Research Round-up Read More »
We highlight 3 studies from last week’s 6 ME/CFS research publications.
NHS England & Department of Health and Social Care Dismiss Concerns about Graded Exercise and Post-Covid Illness Management
The responses from Chris Whitty at the Department of Health and Social Care and Stephen Powis at NHS England to ME Association concerns, were very disappointing.
The Times: Warning over conflicting medical advice to coronavirus recovery patients
The Times: Warning over conflicting medical advice to coronavirus recovery patients Read More »
“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.
Bedbound Midlands singer releases debut album – and is ahead of Taylor Swift in chart!
Bedbound Midlands singer releases debut album – and is ahead of Taylor Swift in chart! Read More »
Kara’s brilliant album, recorded from her sickbed, is performing exceptionally well in the charts. Download your copy today!
MEA Statement: NHS England Guidance on the Management of Post-Covid Fatigue Syndromes
MEA Statement: NHS England Guidance on the Management of Post-Covid Fatigue Syndromes Read More »
The serious concerns expressed by the MEA about the Covid recovery guideline resulted in a reply from NHS England and an article in The Times newspaper.
Severe M.E Week: I’m Tired by O. Ashton.
Severe M.E Week: I’m Tired by O. Ashton. Read More »
Written by O. Ashton – 3.1.2020 I’m Tired… In September
Merryn’s Story: Severe ME Week 2020
Merryn’s Story: Severe ME Week 2020 Read More »
Caring for someone with Very Severe M.E is both an
The ME Association End of Week Research Round-up
The ME Association End of Week Research Round-up Read More »
This week we feature three new research studies including a critical review of genetic research ahead of the DecodeME study.
Severe ME Week 2020: Sophia’s Story
Severe ME Week 2020: Sophia’s Story Read More »
The 8th August is Understanding & Remembrance Day for Severe
A long cross-country walk dedicated to his mum and to the ME Association
A long cross-country walk dedicated to his mum and to the ME Association Read More »
M.E. changed his mum from “being called Tigger because she was always so full of life” to someone who now has to count every ounce of energy used in case it runs out and leaves her floored for days.
Severe ME: Why is improvement subject to such harsh judgement and not celebrated?
Severe ME: Why is improvement subject to such harsh judgement and not celebrated? Read More »
“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”
The English Channel is no longer in lockdown and these relay swimmers can’t wait to cross it!
The ME Association were nominated for this challenge because of Emily who has been housebound with M.E. for 9 years.
My Severe ME by Alison Love
My Severe ME by Alison Love Read More »
It all started for me in 1992, when I was
Music industry backs Kara Jane’s bid for MEA charity album chart success
Music industry backs Kara Jane’s bid for MEA charity album chart success Read More »
The album is out on Saturday, but the single is out now! Help Kara raise funds for the Post-Mortem Tissue Bank to advance vital research into M.E.
The Untold Stories: Severe ME Week 2020
The Untold Stories: Severe ME Week 2020 Read More »
We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.
How it feels to have Very Severe M.E. by Ruth Braham
How it feels to have Very Severe M.E. by Ruth Braham Read More »
“It is incessant, inescapable torture. You are trapped. Completely powerless. You’re in agony with countless unbearable symptoms…”
Severe ME Week: How might healthcare be improved?
Severe ME Week: How might healthcare be improved? Read More »
In this introduction you will find a discussion about the need for suitable healthcare. Also background about severe and very severe M.E. and the support that is available.